Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-02-2009, 08:19 PM #11
SandyRI SandyRI is offline
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Quote:
Originally Posted by lisamweldon View Post
DEar, aint so bad,
It sounds like I made u upset that was not my intention??> Is their a list of questions that are suitable to ask? on line here.. Ok so maybe I am stupid?? I don"t know?? Everyone seemed so welcoming to me when I first came on here, but now I wonder.. I didn't know one question would would get me in the doghouse.. Sorry I will try not to ask any more ignorant questions?? or maybe go back to myspace or fb.. Thanks LIsa

Hey Lisa - you're not in the doghouse. That's just how Pete talks...

I've had the same questions lately about my perc use, so I think you asked a really good question. Mainly because the tylenol in it can harm the liver. I don't think that the dose that was originally prescribed is as effective for me as it used to be. I still work FT also, but I have a desk job. I can't fathom having RSD in my leg and having to work on it - that must be really hard. I also take a number of other meds (most of us do).

I don't see my new PM doctor until Thurs., but my pain levels have been pretty high for 3 or 4 days now. So I have also been taking more perc than what was prescribed, which isn't good. Since my PCP writes my perc script, I know I have to call him and see if we can talk about changing my med to something stronger. You might want to call your doc also. I have my hands full already with my job and family and RSD, I don't need a liver problem tossed into the mix.

Good luck... Sandy
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Old 05-03-2009, 05:07 AM #12
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If giving advice I'd say talk with your doctor, everyone is different and on other different medications...
Having said that, I'm prescribed one every 6 hours max 6/day but my MD is aware that I'm regularly takin on a 4-5 hour schedule during the day...I try to aim 7am, 11am, 3pm, 7pm. If I overdo and the pain is getting out of control I may take 2 (again my MD is aware) or like tonight I'm not sleeping because of pain, I'll take one hoping the pain will lessen enough to sleep.

My RSD is in my right leg, knee down to ankle, following motorcycle accident. I have to keep the pain under control during work hours in order to function. I have 6 1/2 more years until retirement (I hope) if they don't do away with our pension plan. As soon as I get home I'm in bed with my leg up. Lynnie
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Old 05-03-2009, 09:58 AM #13
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sunshinegirl..

i have rsd in my right foot and leg and i do know how hard it is everyday just to walk stand even one step was to much for me. i do not think you question was stupid, i too have asked questions about meds because i want to know is it to much or what works for you.. i want to have a good life i dont want to be siting on the couch all day because of pain. please dont leave this site, keep sharing becasue for me there might be something that you have done that i dont know about that will help me or someone else. take care michelle
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Old 05-03-2009, 10:41 AM #14
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Lisa,

I certainly didn't mean to be harsh or anything. I hope you didn't take what I said the wrong way. And I do know where you are coming from. It's RSD, it's mind boggling. You want some help, you need to talk about it...

RSD is hard to deal with, but flat-out questions about how much to take when serious medications come into play, are a big no-no IMMHO. You asked the question like that. We can't be expected to answer these kinds of questions. These are questions for your doctor. These aren't meds for a simple headache. Please please please go see your doctor until your meds are what they should be, and your pain is under control! That is the most important thing right now!

Does anyone want the responsibility of someone taking straightout advice about dosages given here to heart and upping or lowering their dosage with whatever it may bring about? I don't think so. I wouldn't want that responsibility. That's why it's up to Lisa's doctor. Is it wrong to say that?

Yes, meds are often talked about, meds are often compared, but not in this particular way when someone just plain asks what to take.
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Work related (car) accident September 21, 1995, consequences:
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- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 05-03-2009, 06:07 PM #15
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Quote:
Originally Posted by SunshineGirl View Post
DEar, aint so bad,
It sounds like I made u upset that was not my intention??> Is their a list of questions that are suitable to ask? on line here.. Ok so maybe I am stupid?? I don"t know?? Everyone seemed so welcoming to me when I first came on here, but now I wonder.. I didn't know one question would would get me in the doghouse.. Sorry I will try not to ask any more ignorant questions?? or maybe go back to myspace or fb.. Thanks LIsa

Yes, Lisa.
That is simply how I talk. (I'm SO happy that was noticed!)

I don't want you to leave.
You didn't ask any silly question, there simply is no such thing.
(You need to know, I have a TBI, head injury, also) so sometimes, I'm just acting out.... bad boy!!

I can be a jumblebrat! And, I don't mean to take it out on anyone!

Please,
Stick Around?

Pete
asb
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Old 05-03-2009, 06:09 PM #16
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Quote:
Originally Posted by AintSoBad View Post
Yes, Lisa.
That is simply how I talk. (I'm SO happy that was noticed!)

I don't want you to leave.
You didn't ask any silly question, there simply is no such thing.
(You need to know, I have a TBI, head injury, also) so sometimes, I'm just acting out.... bad boy!!

I can be a jumblebrat! And, I don't mean to take it out on anyone!

Please,
Stick Around?

Pete
asb
Yes sometimes maybe I say things I shouldn't. Thanks again Lisa
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Old 05-03-2009, 06:21 PM #17
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12 pills of tylenol is toxic!! The limit you can take is 8 pills a day. Anything past that and you're damaging your liver and risking overdosing. No doctor will prescribe more than that. Well, no good doc will.

We all take the amounts of meds which seem to work for us. Though to your original question, 6 isn't too much as far as it goes. If it keeps things under control for you and your doctor is comfortable with it, then you're set! :-)

Hugs,

Karen
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Old 05-04-2009, 02:18 AM #18
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Your total daily dose of Tylenol should never exceed 4000 mg.

There is no cap on what a maximum dose of hydrocodone could be......it all depends on your doctor's willingness to up the dose, your pain tolerance, activity level , etc.

There is no magic formula either for "6" hydrocodone for RSD for 1 extremity, OxyContin for 2 extremities, Fentynal patch for whole body, etc Every patient is different.

I will say that Hydrocodone 10 mg/Tylenol 325 mg has only ever lasted me 4 hours, never 6 . Normal dosing is for every 4 hours.

There are no dumb questions when it comes to meds.

I'd also caution you that comments like "Some Chronic pain people aren't even doing that ?? They sometimes just think disability is the way to go.. anyhow thanks for the info.. " can really offend people. I am on disability now and I've give anything to be able to work again. I'm still hopeful it will happen once WC approves tx for my RSD

We are all just trying to struggle along having this crappy condition
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Old 05-04-2009, 02:39 AM #19
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I hope your pain is kept within your med scope;working can be very difficult under the influence while at work, as well as driving.
You have been given good feedback on your question.
hugs,
Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 05-05-2009, 09:05 PM #20
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Quote:
Originally Posted by finz View Post
Your total daily dose of Tylenol should never exceed 4000 mg.

There is no cap on what a maximum dose of hydrocodone could be......it all depends on your doctor's willingness to up the dose, your pain tolerance, activity level , etc.

There is no magic formula either for "6" hydrocodone for RSD for 1 extremity, OxyContin for 2 extremities, Fentynal patch for whole body, etc Every patient is different.

I will say that Hydrocodone 10 mg/Tylenol 325 mg has only ever lasted me 4 hours, never 6 . Normal dosing is for every 4 hours.

There are no dumb questions when it comes to meds.

I'd also caution you that comments like "Some Chronic pain people aren't even doing that ?? They sometimes just think disability is the way to go.. anyhow thanks for the info.. " can really offend people. I am on disability now and I've give anything to be able to work again. I'm still hopeful it will happen once WC approves tx for my RSD

We are all just trying to struggle along having this crappy condition
Yes I understand why you In quotations copied what I said, I guess it was insensitive to say that and I am sorry.. Just now learning about rsd and the best way to handle it>> Thanks Again LISa
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