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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Well everything went well, i checked in at 6 and had my IV in by 630, had 4 of versed in me 15 min later and well.. everything after that till about midnight is a blur... my doc was going over how much i was given last time and said he'd give me more, maybe it'd go as far as 2 grams (2000mg)- which would be double from the previous infusion. but he wasn't sure if we'd go that far.... well apparently we did, and went further. i set a record at 2200mg of ketamine. this time i did, i'd sure hope so, reach the "knock out" stage. it was a little difficult i guess to wake me up but i did eventually. haha and i guess apparently according to my mom the first thing i asked was if there were any hot doctors lol. so i was pretty out of it till about mid night... kept repeating things i'd already said... needed help walking and such.... but around midnight i was ok pretty much to walk on my own.. i did have some hallucinating... it was like a radio was in my head.. i'd hear a song and then it'd go static and to another song... drove me nuts. but other than that so far so good!
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~*Andrea*~ |
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#2 | ||
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I guess you are saying it is working for you...That is great!
Debbie |
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#3 | |||
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i am so glad everything went well for you and hope that it will continue.take care michelle |
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#4 | |||
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I'm puzzled about something.
Normally the protocol for low dose ketamine (see RSDHope) is that they use as much of the Ketamine just to make the patient a little drowsy... certainly NO more. I've never heard of them upping the Ketamine like that. Is that standard protocol or has something been changed lately that I don't know about?
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#5 | |||
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Magnate
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I'm glad it is working for you. Sounds like you got enough to last a lifetime.
Here you are drugged up and looking for hot Drs. LOL I've yet to see on in the 100+ I've seen. Had a good looking cop at my door last week. I'd left my back car door open and he stopped to make sure there wasn't anything wrong. He was cute girl. Hope this works for you and continues to work for sometime. Ada |
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#6 | |||
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andrea
im glad that it went well.... i hope that it helps and keeps helping for awhile carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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#7 | |||
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I am still having mild hallucinations at night, and am being emo, and am unease/anxious at times but i can control that quite easily with the ativan i got. i'm taking 40mg of k twice a day and ativan at night, and if i feel i need it during the day.
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~*Andrea*~ |
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#8 | ||
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Senior Member
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I am so happy for you.
I think I remember that you told us your first round was not covered by insurance. Were you able to get the 2nd round covered? Or did you have to pay for the infusion and related expenses yourself? I hope that you remain painfree forever (or at least a really long time...) Sandy |
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#9 | |||
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I get it now, thanks for explaining it to me, Andrea. I hope you stay pain free for a long time!
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#10 | |||
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__________________
~*Andrea*~ |
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