Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-05-2009, 10:25 AM #6
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Ada,

It's awesome that you have a pair of PT's to help you, but I am sorry that they gave you bad news. Try to take each problem one at a time. It took me more than 2 years and 5 or 6 PTs before I finally found one that believed I was really in pain - I think I just looked too good (my RSD started in my shoulder, where you can't see any swelling). It was evident that the rest of them thought because I was WC I was lying (even though I had returned to work FT). Earlier this year I wrote the worst offenders a letter and gave them the link to the RSDSA web site, hoping to save future potential RSDers from the same treatment.

At least you are moving. Wouldn't it be worse if you couldn't move and your pain was there anyway? I try to look at my pain that way in an effort to keep myself sane (although admittedly it's a close call some days). You said that you had boys to take care of, I really hope that they help to take care of you, too! Are they old enough to assume some responsibility for chores around the household? I think that if I made my kids do more of the stuff that I tend to do, then I would have fewer problems with pain. Are you like that too?

Please take care and try not to get too stressed, which will make you feel worse. XOXOX Sandy
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