Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-05-2009, 11:43 AM #1
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Originally Posted by dreambeliever128 View Post
I went to see my Physical Therapist today. He and his wife took care of me for 2 years and then I haven't seen them for a little over 3. He says God keeps bringing me into their lives. He told me they worried about me after Bill died and prayed for me. He's very religious.

Anyway, he says I am much worse off then I was when they last saw me. Good to hear, huh? LOL

He asked me why they haven't addressed my neck problems. As I told him, we take things in the order of which is the worst. He thinks my neck is one of my worst problems. He also says I am standing crooked now, to the right. He stretched my neck to deal with the TOS and other issues. I go back Wed. He says my back is worse, knew that.

As I told him, I know I overdo but when you live by yourself and have to do for yourself then you have no choice. I never sit still. He says I am a walking miracle. As I told him, he's the 3rd to tell me that. I know I am but I get frustrated because I can't get farther along in getting well. I know I will always have some of these issues but I do want to get better to a point.

I still need at least 3 more surgeries and not sure if that will end it.

Anyway just venting. I am so tired from the therapy. He did give me some exercise for my neck to do. Miminal exercise. I love these two. They are the best in PT and the best of people.

Thanks for listening. I'm going to my Dr. next today.

I know a lot of you feel frustrated also, I can so relate.

Ada
Ada,
Please know you are in my thoughts and prayers also. I'm glad you have such great PT's, that's a blessing for sure. My heart goes out to you, and to everyone else who deals with this monster every day. You are a strong woman, things will get better.. one day at a time.
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dreambeliever128 (05-05-2009)
Old 05-05-2009, 03:05 PM #2
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Default Hi and thanks for the support.

Hi Sandy,
My boys are my Grandson's, will be 15 and 16 here in a few months. They are in school so they can't do much right now but in the summer, they mow my grass and I love having these two around. They are so much fun. We pull jokes up on the computer, they tell jokes they have learned, they sat and talk to me. My oldest confides in me more then his Mom and Stepdad even though they are very understanding with them.

Dustin will be in the 11th grade this year. He's in track and is going to take some pre-med courses. He has the cutest little girl friend of more then a year.

Devin will go into the 9th grade. He is gifted and talented. He is at the high school today shadowing his cousin. He will go to every class with him. His cousin is in the 12th grade. The teacher has done told him that he can do the acting class and problem solving next year. He's going into football and basketball as always.

Susan helps me with things around here. She is my caregiver. I just don't like to wait for her to get here when something needs doing. She helped me plant grass today.

I do have help but I never sit down. I am very blessed with my kids and grandkids and my son-in-law. They all pitch in and do what they can for me.

I am just not one to sit and wait for someone to do for me. It's hard for me to say no to friends to so I help out out in several shops around here.

CRPSbe, you are right, I am glad he was honest with me but it's a bitter pill to swallow at times.

I'm very tired again today. I helped rake the yard and plant grass and helped rip up the carpet in my kitchen.

Thanks to all of you for the support.

Ada
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Old 05-06-2009, 12:18 PM #3
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Ada,

My son is 15 and is very cute. He also helps out around the house and yard, but you have to watch him like a hawk as he is easily distracted and is often interrupted by cell phone calls, text messages, and numerous nature's calls when it is time to do any work. My husband is stricter than I am and can usually get more out of him. He is also clueless when it comes to anything in the garden and once cut back the wrong perenniel almost all the way to the ground when I wasn't looking (I swear he did it on purpose to get out of future gardening chores!). He wears a size 12 shoe so one step in the garden on the wrong spot can take out a whole family of baby plants that have just sprouted. But he does have the advantage of being way bigger and stronger than me and can mow and rake and haul so easily. We just need to work on the attention span thing!!

Hope you are having a good day today. You are an inspiration to me because of all the things you are still able to do. But I have to say that my pain levels have improved since I stopped doing so much with my arms, I NEED to learn to take it easy. I even slept last night for a while. When I was young I was a swimmer and a lifeguard, I had awesome shoulders. It's a bummer that I can't use those muscles anymore because of my head pain. When did you finally get over that "adjustment" period?

Take care, Sandy
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Old 05-06-2009, 01:01 PM #4
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But I have to say that my pain levels have improved since I stopped doing so much with my arms, I NEED to learn to take it easy. I even slept last night for a while. When I was young I was a swimmer and a lifeguard, I had awesome shoulders. It's a bummer that I can't use those muscles anymore because of my head pain. When did you finally get over that "adjustment" period?
It's been almost 15 years now and I still haven't adjusted to what RSD has done to me and to my body!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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