Thank you for the update. I'm wishing you good luck when you start your course next fall. My daughter is taking some college courses next fall also. You will do well, I just know it! Hang in there! You're a tough young lady!!!!

Yeah about the school. You are amazing and am so happy this worked out. I am sorry about your current school and friends. I can relate to crappy friends and you have to try and this is hard but remind yourself they have issues. A true friend is there through the good and bad times. I wish I had more answers or suggestions for treatment for you. You may have mentioned this but have they thought of a temp scs to see how you do with that? Sending thoughts

Thank you all so much for the kind words and support! I'm SO glad that I got into college also as I really wanted to prove that I CAN do something even though I have RSD!!! I know it will be a lot of hard work but it is something I want to do so hopefully it will be well worth it in the end!!

I'm still not sure what to do about the botox. I REALLY want the Dystonia to go as it affects my life sooo much but on the other hand, I don't want to make my RSD worse and be put in a wheelchair again. I think we really need to weigh up the pro's and con's. I went to PT on Wednesday and they suggested seeing how the next 2 sessions go and if things dont improve then they want to admit me to do some intense work before trying the botox which I think is a good idea.

My mum had a meeting with the school centre yesterday to see if I could possibly start going there full time as school really isn't working out. The teachers were really understanding and took the time to listen. They agreed with us that you cant force someone to be your friend and that the extra stress isn't helping. The teachers said that they dont see any problem in me going there full time but that they would need to speak to their boss about it as he makes all of the final decisions. Hopefully next week we will have some answers as to whether or not I can go there!!

One of my close friends left the school centre today. She is emmigrating to Australia so it was a pretty sad day. It's kinda hard knowing that i'll probably never see her again. She has helped me through a lot of difficult times and has always been there for me. We both have email though so hopefully we will be able to keep in touch via that once she has settled down.

Thanks again everyone and i'll keep you all posted.

There are so many different muscle relaxants they could try before they resort to Botox.

For example. I am on Tetrazepam, I react to it well, it does what it's supposed to and it relaxes my muscles. I once tried Baclofen. What happened? Not much. I didn't respond well to it at all. So maybe it's key to find the muscle relaxant that works for you. Different meds can have a different effect on different people. But I'd try the muscle relaxants first. That's what I'd do... I'd not skip that step and go straight for Botox.

Hope you'll get some great news to share next week about school.

It's really sad about your friend, but hey... thank God for the net, right! And maybe she'll come back for vacations with family.

Thanks. I have tried all of the muscle relaxants available so that is why they are looking down the route of botox as nothing else has worked. I have been on lots of muscle relaxants for the dystonia and myoclonius and none have really helped and they made me really drowsey. I will look into some muscle relaxants though to see if theres any more available to try but I dont really think there is from what my dr told us.

Thanks again.

Ali - is it possible for you to leave the UK and go to another European country for treatment? For instance, Germany has ketamine. They likely offer the multi day long infusions as well as the comas. Perhaps you can find Lidocaine infusions in a nearby country . It seems that you are pretty limited in your choices right now, and your suffering has become more severe since your arm injury last month.

The family of a boy from my state (in the US) that needed financial help getting to Germany for the K coma held numerous fundraisers and collected money through a website.

Sandy