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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-09-2009, 08:40 PM
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In Remembrance
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Quote:
THANKS for that, Marleen! Is it a good book to share with family? (easy reading, or, will it just end up collecting dust?) Just looking for your opinion... Thanks again! pete asb |
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05-10-2009, 09:33 AM
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 You definitely need to read it! Definitely! Whether it will be good for others who don't have RSD, I don't know. If they don't understand it now while you are explaining it in simple terms, then I doubt you can shove a book in front of them and make them read 238 pages. I have it with me now and it's full of sticky notes and pencil marks from where I have read important, to remember bits. I have to say, it is the most comprehensive work that I have read about RSD. There are a number of personal stories in it as well. Sometimes it can get a tad "medical" but I don't find that at all disturbing. Chapter 7 for instance deals with RSD and "changing family dynamics" and I have marked this paragraph because it appealed to me and stated what I felt perfectly, "There are many books and articles that claim severe illness is a journey that can lead us to the true meaning of life. They say that illness is a gift we should be grateful for because, if we follow the writer's advice, we will be magically transformed into a new and beautiful spiritual whole. Let me just say that I feel many things about having RSDS, and none of them contains the word "gift." I would gladly have foregone the whole experience and lived a healthy, normal life. However, I do not have that choice." Definitely a recommendation from me! It's written by Linda Lang & Peter Moskovitz, MD and the money that is made from it is going to the RSDSA. It is from 2003, and I don't think it has been updated with new research, so you have to keep that in mind. I have a number of other recommendations besides that book, books on pain, if you're interested. None of that new-age crap about dealing with and overcoming pain, though (sorry if others believe in that stuff).
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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05-10-2009, 09:35 AM
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Yappiest Elder Member
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Karen if you need to add any questions, you can always make a poll here.
To be sure that only people with RSD answer, you can make it to show the names.
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05-10-2009, 04:00 PM
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Thanks curious! Hadn't thought of that. :-) I know of one that I left out. I'll use the suggestion for the "missing" question, in a little while. LOL
Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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| "Thanks for this!" says: | Curious (05-10-2009) |
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