Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-09-2009, 09:03 PM #1
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
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Quote:
Originally Posted by daniella View Post
You know after so many doctors I have heard so many different things from doctors and have experienced too many "flukes" as I call them that they say are not related to either a treatment or RSD. I have also gotten such a range of how I will be in the future that often I feel many of us are a big guess to doctors. There is so much unknown about RSD and since we are all different who knows. I bet if you went to a few other doctors and asked similar ?'s you would get a range of answers. On a side note I do feel when one part of your body really hurts it can cause other parts to feel sore as well for either compensation or it just makes one whole body ache. I hope you get relief from methadone too

Daniella,
My local RSD friends and I call that the "Test Dumby Syndrome" with the doctors actually having to "learn" from us. Even the best of them.

An Egotistical doctor, who "knows it all", is NOT a good choice for someone with RSD.

We need a doctor who accepts what we say, and may not be able to "fix" it, but will still believe us and, "IN us".

Be well!

pete
asb
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