Dear Jenelle,

You should be looking for the best RSD doctor you can find - in a teaching hospital or a large medical center. Since you were hurt on the job you are covered by WC for your care. Do you have a good WC lawyer that will advocate for you? Are you going to PT? Have you meds been fine tuned?

On this board I was amazed to read a few months back that pregnancy puts RSD into remission.

I think that you are giving up too soon.

Good luck. XOXOX Sandy

Somehow this doesn't surprise me.

It seems there are lots of things that want to make it stop. I keep thinking there should be a way to trick the brain into turning it off permanently.

the pain clinic is supposed to be the ones in the know with the latest treatments so we will see. I have been putting it off but just got a date to meet with a lawyer. thanks for your concern!
Jennelle

You're welcome. I've have so many episodes of total despair since getting sick! For the most part, the people on this board, my husband, my PT and a few of my friends have helped keep me sane. And, of course, my dear sweet little dog who faithfully walks with me at least 3 or so miles every day. It's just so crazy!! I can SO sympathize with you.

My problem for well over a year was that no one believed in my pain, and two of the "supposed" best docs in RI messed me up with a debridement surgery, aggressive PT, repeated icing, and over 30 trigger poing injections. I think I probably had RSD for at least a year before I was diagnosed. I was in so much pain it's amazing that I didn't lose my mind.

My doctors in Boston told me last Monday that they were going to submit my case to a pain clinic where ketamine is administered. But today is Thursday and I haven't heard anything yet, so I'm getting nervous that perhaps they aren't going to accept me. I started taking methodone a week ago for pain. It works really well, but I am so stupid on it! I definately can't take it forever and continue to work. If I could get the ketamine I could wean myself off of ALL my meds. How cool would that be?

Take care, Sandy

P. S. If you read some of the old posts here you'll see where it's reported that for some pregnancy puts their RSD into remission.