Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-02-2009, 05:02 AM #9
baseballfan baseballfan is offline
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Join Date: Mar 2009
Location: California
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baseballfan baseballfan is offline
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Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
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Quote:
Originally Posted by Jennelle View Post
I can totally sympathize it seems that lately I have nothing but spreads...started in left arm then right now legs....I too have to take off my ring and it is like a slap in the face at times because you feel like something is always missing....note to self find a safe place you ALWAYS put it in I have had some scares. I know that spreads can be disheartening and also depressing. I felt like I just mastered my arm when bam...spread. I feel for you and hope that you can get help with it soon. Make sure to start your desensitization routine and pt/ot asap. The sooner the better. I put compression bandages on as soon as I know I spread and it desensitizes me so well the only place I am hypersensitive is where they don't cover. It hurts a lot at first for a couple weeks and then I found it gave me freedom...to wear clothes I want...to have someone touch my arm...still can't have them pat me but light touch doesn't send me through the roof. Know that you are cared for....everyone who has spread feels for you i am sure. There is still hope....it takes adjustment but it will happen if you try.
lots of love and positive thoughts your way,
Jennelle
Hi Jenelle,

Thanks for understanding. We all have this going for us faith, hope, and love.

Kate
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