Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-18-2009, 01:02 PM #11
AintSoBad AintSoBad is offline
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Quote:
Originally Posted by kittygato View Post
The neuro said that my injury was ulnar nerve damage as proven by the EMG.
Stephanie,
Do you have, or has your neuro sent you too see a good hand specialist? They usually do hands, arm, shoulder.
I have ulnar nerves too, and it "can" be associated with TOS, and lead into carpel tunnel. (as mine is/does).
Hope your isn't / doesn't!

Do you find yourself holding or positioning naturally forward? If you're just sitting down for instance, at rest. Would you just keep that arm in your lap?

Just something to be aware of...


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Old 05-18-2009, 02:30 PM #12
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With TOS , or other causes too I suppose..., you can have what is called a double or triple crush.
where the nerve is impinged or compressed at multiple places.

For instance if your EMG shows ulnar damage you could still have compressions farther up in the the BP area.
If someone also is having carpal tunnel symptoms along with the ulnar, that would be called a triple crush. BP + ulnar + carpal

With that scenario most likely you would have some other symptoms showing in your neck, shoulder, whole arm/hand, etc.??

One of the TOS members had it explained this way.

The nerve {ulnar} is about 3 feet long , any compression or impingement { even sticky tissues} could cause symptoms to "show" down the line from the c spine where it originates.

I had ulnar sx for about 2 months - but those sx were really from extremely tight /spasmed muscles in my neck and upper back.
They were pulling the vertebra and causing pressures on the nerve.
I also think the sticky fascia scenario was a big component for me.

I don't know if this might apply for you, but just wanted to give the info, TOS is often mis dx'd as something else or not dx'd at all.
Another one of those rare syndromes
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Old 05-18-2009, 02:57 PM #13
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Quote:
Originally Posted by AintSoBad View Post
Stephanie,
Do you have, or has your neuro sent you too see a good hand specialist? They usually do hands, arm, shoulder.
I have ulnar nerves too, and it "can" be associated with TOS, and lead into carpel tunnel. (as mine is/does).
Hope your isn't / doesn't!

Do you find yourself holding or positioning naturally forward? If you're just sitting down for instance, at rest. Would you just keep that arm in your lap?

Just something to be aware of...


Pete
asb
They ruled out carpel tunnel months ago since I do not have any of the common symptoms. The only tingling fingers in my hand are the last two and although my entire hand burns, I dont have any problems with any of my other fingers.

I do not normally sit forward, but I always rest my arm in my lap. It's more out of a defensive move than anything else. I tend to be EXTREMELY protective of my elbow since I still have an enormous amount of pain in that general area. The bruising only recently went away from the accident.

Within the months following the accident I had my neck, shoulder, elbow and hands checked out. The only area that showed a problem was my elbow and the last two fingers.

Is it possible that the RSD diagnosis is completely wrong and that this is something else?
I have the swelling, the temperature and color changes, the nail growth, the (embarrassing) hair growth, the burning, etc, etc. The neuro said that was all textbook.

I may have missed it in previous posts, but what is TOS?
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Old 05-18-2009, 03:35 PM #14
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Here's the sticky thread from our TOS forum {thoracic outlet syndrome}
post #1 has a crash course of info sites and then if it sounds familiar you can explore more form there.
http://neurotalk.psychcentral.com/thread84.html

Having afew days of super nice weather so I'm just popping it quickly or else I would explain it more, but the sites are very good and save me the typing ... LOL
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Old 05-18-2009, 04:47 PM #15
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Quote:
Originally Posted by Jo*mar View Post
Here's the sticky thread from our TOS forum {thoracic outlet syndrome}
post #1 has a crash course of info sites and then if it sounds familiar you can explore more form there.
http://neurotalk.psychcentral.com/thread84.html

Having afew days of super nice weather so I'm just popping it quickly or else I would explain it more, but the sites are very good and save me the typing ... LOL
hmmm.....after reading up on TOS, it sounds more likely that my symptoms are caused by RSD. I cannot relate to alot of the TOS symptoms.

I have an appt with my PCP on Wednesday and am hoping that he can shed some light.

In the meantime, I will keep reading the suggested articles and gather as much info as possible.
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Old 05-18-2009, 06:40 PM #16
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All of those symptoms are definitely rsd and as the Neuro said, "textbook". I'm sorry you're dealing with it at all and hope that treatments will work to put it into remission.

Hugs,

Karen

Quote:
Originally Posted by kittygato View Post
Is it possible that the RSD diagnosis is completely wrong and that this is something else?
I have the swelling, the temperature and color changes, the nail growth, the (embarrassing) hair growth, the burning, etc, etc. The neuro said that was all textbook.
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