Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-19-2009, 07:30 AM #11
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ive been off them for years. but what they are talking about is a couple years ago there were problems with the durgesic if i think the patchs that they were leaking with heat from bath,showers and giving more meds then supposed to.
of course that was right after the patches became available if i am correct
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Old 05-19-2009, 03:38 PM #12
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Hi Dennis,

Sorry to hear that you are feeling so bad on the Fentenyl!

I don't have any experiences with the med at all but agree with what the others have said; you really need to call your doctor and ask what he/she suggests you do as you shouldn't have to be dealing with all of this!!

I'd stop taking the med if I was you and call your doctor as soon as you can. I'm not sure if any withdrawal symptoms are involved with the med so obviously read the packet or on the internet to see what it suggests you do first! I've had a nasty time with withdrawal symptoms so it's really important you do it correctly if there could be any involved!

Take care and please keep us posted - sorry I cant help you that much, just know that you are in my thoughts! I hope you feel better real soon!
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Old 05-19-2009, 06:39 PM #13
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I went into a 3 and half week coma and one of the reasons the they think is off of these patches... i would immeditaly call your doctor and tell him what is going on... These things are not a joking matter after my coma my doctor explained that most ppl go into a coma like state and die... if they have to much of the fentanly in there system or if their body simply is reacting to it badly... REALLY I STRESS CALLING YOUR DOCTOR!
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Old 05-19-2009, 06:45 PM #14
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Jacquelina you are very right fentanyl is no joke it can killer faster than any other med out there .. i hope dennis that you called the doc and told him what was happing because there is no lead way with this drug period

carrie
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Old 05-20-2009, 09:00 AM #15
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I am on Fentanyl now. The only time I ever had a problem with them is when I spent too much time out in the heat & sun. You are not supposed to do that & it was my first time & I didnt realize the limits. You are supposed to avoid long hot showers & heat & sun when on thre fentanyl patch. If your body temperature gets too hot it can dump too much med into your system too quickly. I would definately call the doctor. You might have started on too high of a dosage on the patch. I hope you find something that helps you.
Have a low pain day.
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Old 05-21-2009, 12:26 AM #16
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Quote:
Originally Posted by GalenaFaolan View Post
I was put on the patches by a neuro while I was still a wc case. OMG! It made me soooo sick. It's been over 5 years now, but I think it started for me around hour 12. I couldn't eat, drink, nothing. I have never in my life felt that bad. It went on for 2 days or so and I called the doctor. I was given instructions to fold the patch over so only a small bit was on my skin. About 12-24 hours later.....like night and day. I was back to my old self with no more sick feeling! That was nice. Ever 3 days when I put on a new patch, I would inch it up a little so that a bit more was in contact with my skin. It took close to a month to work up to just putting the patch on with no folding.

Everyone's body is different in how it rids itself of medication in the body. It sounds like with you still feeling so horrible, yours is slow to rid itself. You should start feeling a lot better really soon.

He took me off them 2 months later to, in his words "See if your pain is better now." ROFL Yeah, sure it is! *shakes head* Whatever, I began folding them again going backwards until I was "off" them. Just like weaning off pills. I felt slightly sick the whole time I was on the patch anyway and didn't like that. It was a good thing work comp was paying for them because they are wayyyy to expensive to get on my own.

I didn't know until after I settled my case that you should not be put on the Duragesic patches for pain relief until you have taken other pain meds for some time. For example, having taken vicodin, perc, oxy, etc and you find they are not working any longer and you need a stronger pain medication. Fentynal is 80-150 times stronger than morphine! This is not something a doctor should give to someone who has taken next to nothing for pain meds. That was my case. The only meds I had been given to that point were 7.5 lortab for 2 months and 5mg vicodin for a couple of months. He should never have put me on the patches.

Hugs,

Karen
Hey --

Like you, it seems I've found out that the fentenyl patches should not be used until someone has previously taken opiates, working their way up so to speak to these potent patches. As I've taken no opiates before this, thus this disaster.

My doctor communicated as much to me through his office, and that we should probably start at a 12.5 patch next time. Next time? Not so sure about that one. My pharmacist was really well versed on this topic too, basically giving me an explaination akin to your posting.

I've taken a script for nausea, and have been taking lorazepam regularly since; things have calmed down - can eat and all that. Still a little shaky. Hoping that wears off soon too.

-- Dennis
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Old 05-21-2009, 12:32 AM #17
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Quote:
Originally Posted by wildberry2277 View Post
I went into a 3 and half week coma and one of the reasons the they think is off of these patches... i would immeditaly call your doctor and tell him what is going on... These things are not a joking matter after my coma my doctor explained that most ppl go into a coma like state and die... if they have to much of the fentanly in there system or if their body simply is reacting to it badly... REALLY I STRESS CALLING YOUR DOCTOR!

Hey --

Sorry to hear of your travails. Sounds like you've been through an ordeal.

I'm sure you're aware, there is a lot of litigation in regards to these patches, as they have been noted to deliver all the dose at once instead of over three days, through rips or tears in the patches, or something like that.

In any case, were you able to pinpoint what exactly was the cause of your coma? Was it indeed the fentenyl?

Thanks.

-- Dennis
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Old 05-21-2009, 02:23 AM #18
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great advice on trying these patches after being on the heavy duty meds for awhile.....



Quote:
Originally Posted by GalenaFaolan View Post
I was put on the patches by a neuro while I was still a wc case. OMG! It made me soooo sick. It's been over 5 years now, but I think it started for me around hour 12. I couldn't eat, drink, nothing. I have never in my life felt that bad. It went on for 2 days or so and I called the doctor. I was given instructions to fold the patch over so only a small bit was on my skin. About 12-24 hours later.....like night and day. I was back to my old self with no more sick feeling! That was nice. Ever 3 days when I put on a new patch, I would inch it up a little so that a bit more was in contact with my skin. It took close to a month to work up to just putting the patch on with no folding.

Everyone's body is different in how it rids itself of medication in the body. It sounds like with you still feeling so horrible, yours is slow to rid itself. You should start feeling a lot better really soon.

He took me off them 2 months later to, in his words "See if your pain is better now." ROFL Yeah, sure it is! *shakes head* Whatever, I began folding them again going backwards until I was "off" them. Just like weaning off pills. I felt slightly sick the whole time I was on the patch anyway and didn't like that. It was a good thing work comp was paying for them because they are wayyyy to expensive to get on my own.

I didn't know until after I settled my case that you should not be put on the Duragesic patches for pain relief until you have taken other pain meds for some time. For example, having taken vicodin, perc, oxy, etc and you find they are not working any longer and you need a stronger pain medication. Fentynal is 80-150 times stronger than morphine! This is not something a doctor should give to someone who has taken next to nothing for pain meds. That was my case. The only meds I had been given to that point were 7.5 lortab for 2 months and 5mg vicodin for a couple of months. He should never have put me on the patches.

Hugs,

Karen
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Old 05-21-2009, 02:26 AM #19
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i have the same problem with the fentanyl patches.(my skin hates the glue) so i use Flonase. a couple of pumps on the arm before applying the patch and i am all good, not perfect but so muchbetter off.




Quote:
Originally Posted by angelrsd View Post
i have been on fentanyl for years i havent had any of the problems except reactions to the actual patches with the sticky stuff on them. i have fentanyl in my pump and it does take a while to adjust to it

about the dreams i do have these with it. and they do eventually they do go away.. i hope that the med to stop the vomiting will help it. im sorry that you have had a bad reaction

hang in there

carrie
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Old 05-21-2009, 02:30 AM #20
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i haven't heard of the toxin problem but i do know recently that they recalled several batches of fentanyl patches due to a manufacturing problem.





Quote:
Originally Posted by loretta View Post
Hi dshue,
and CARRIE
I've seen several times on tv to anyone on fentynyl patch to contact an attorney here in Phoenix. There are some very dangerous toxie reactions to the patches.. I may have the name and phone number writtin down somewhere. But definetly, sounds urgent to call your Dr. and follow his directions. If anyone wants me to look for information, just pm and I'll try.
Take care, loretta
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