Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-20-2009, 07:39 AM #1
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Default Hi Noah,

The only pain med I use is the Lidocaine patch for my shoulder and pelvic area. I have been off of my Methadone for about 8 or 9 months.

I was able to get to this point through Physical Therapy, blocks, and triggerpoint injections.

I have had the same PCP for over 19 years. He's also a Sports Medicine Dr. and does councelling. He did it all for me. He sent me out to many Drs. first to get diagnosed then to get treated. The PM Drs. I saw were jokes, the same as the Neurologist. I finally found a good Neurologist for MS after seeing about 5. He did take care of RSD but now he only deals with MS. He didn't take care of my RSD anyway. MY PCP did it all.

I ordered him Dr. Hooshmand's book for Christmas one year and he read it and learned what he thought would help him with my pain. The triggerpoint injections did the best for me but they take many. He used Lidocaine and also used ketamine for the injections.

I do pretty good if it weren't for the pelvic pain which is nerve pain and also I feel this last winter on ice and messed up my shoulder.

The only time I see my RSD come out is when the barometer changes then I go nuts from the pain.

I think you almost have to treat RSD healing like a job. You have to find the right Drs., study and help them with what might help you, and just keep at it.
You sure can't forget it's there.

Ada
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