Thanks all! :-)

Yup, ice is a big no-no! Before I knew I had rsd I used ice on my knee. I wondered why I was always in a lot more pain when I did. It was because of the pain I stopped doing that. The 2nd round of pt I about smacked the woman there. First thing she did was grab ice and I told her, "Oh no you don't! I have rsd and you can't put ice on me. You can only use the moist, heated towels on me...heat only!" She gave me a look but I stood my ground. I wasn't being given any pain meds thanks to wc so keeping my pain under as much control as I could was vital. She was a dummy anyway. LOLOL

Hugs,

Karen

One doctor told me that if I didn't want to have RSD I wouldn't have it!

The guy was pretty smart though and was able to figure out what it was from the name (RSDS). Fortunately he wasn't my doctor so I didn't even need to fire him. It is interesting he'd never heard of the condition before.

I've always found that people who do well believe it's entirely skill and good living and those of us with problems always believe that it's bad luck or just the breaks.

...Go figure.

Right, and if we want fairies and gnomes to exist, they will. And if we want to win the lottery, we will. Power of the mind, ya know. I suppose we're some kind of "new" or "different" species then, right. Please!

I have had rsd for 7 yrs now and it took docs 3 yrs to even figure out that is what I had. Now that I have it almost all docs want to rid me like a piece of trash because I have a lawsuit and they don't want to be part of that so of coarse they want to take the easy way out. All docs I have seen have all told me that it cannot spread so I sit hear with my dominent hand which it started in all the way up to my neck, my right hand all the way up to my neck, my lower legs and feet all in pain and weakness but no dx. The docs think it is all in my head and that it can't be rsd cause rsd can't spread. My legs are so weak I need a crutch made special due to me not being able to put weight on my hands to give me stability cause of me falling due to the weakness. Just wonderful huh? I hate it that the docs won't dx it. I already have a feeling it is rsd but they won't say it cause they don't think that rsd can spread. That just sucks.

Sincerely,
Tracy

Tracy,
It totally sux.

I hate to say, but I don't think you've found the right doctors yet.

A 'Good doctor' will have your best interests at heart, and put them first.
His loyalty will be to you.

Keep looking.

A Good doctor, will be happy to testify for you. (They get paid for that, you know, your lawyer pays them, from your settlement).
This is why I always push University Hospitals, find the "chief of neurology". His C.V. is thick (Curriculum Vitae). That's his "experience",
and the docs with the "biggest" get believed the most. They make ins. companies cry.

Not to worry, these things take time.
As I'm living proof.
I didn't write what I did to brag.
But, to give some hope to folks like you!
It can be done!
It's a difficult job. But, You Must Do It!
What's the option?
Crying?

Yes, we all Cry.
Then, come to a point where we can't Cry No More, and pull ourselves together, and get at it!
Keep Prayin', and find the right doctor(s).

Read along in this place, it's full of "clues"!

I wish you the best!

Pete
Asb