Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-13-2009, 04:32 PM #1
Miz Lizzie Miz Lizzie is offline
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Miz Lizzie Miz Lizzie is offline
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Default new member Miz Lizzie

Quote:
Originally Posted by Jo*mar View Post
Feel free to post your story, your RSD history, or an introduction to the forum members.

Welcome to the RSD/CRPS forum.
Hello out there! I was just diagnosed with CRPS a week and a half ago. I live in the great Pacific NW also!! So thankful to find an active site. I am sort of going crazy trying to find out everything I can and mostly what is normal and what isn't.
I also have fibromyalgia and systemic lupus, but the lupus has been quiet lately (thankfully).
I fell off my bicycle last September and hurt my foot. It just never got better and in fact is worse. Had multiple MRI's and x-rays but they couldn't find anything broken, just soft tissue swelling and inflammation. I'm relieved to have a diagnosis, but not necessarily happy with it
The area is my left foot/ankle, but it seems to be spreading up my leg. The swelling is awful and the tenderness is exquisite. My doc put me on Celebrex which is helping with the pain, but still get shooters and lots of burning, aching type pain. I go back to the doc tomorrow to see what is next. This is not fun and I'm ready to quit playing.
Miz Lizzie aka Queen Foothurtsalot
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Dew58 (05-21-2009), LinJane (05-21-2009)
Old 05-14-2009, 10:53 AM #2
Miz Lizzie Miz Lizzie is offline
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Miz Lizzie Miz Lizzie is offline
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Quote:
Originally Posted by angelrsd View Post
lizzie

wanted to welcome you and come down and join any time you feel like it. ask away.. i ahev had full body RSd for 11 yrs..
im sorry that we had to meet this way..

come down and join the crowd.
ask anything and everything.. there are alot of great people here

welcome again

carrie
Thank you! Was wondering if anyone has experienced a light rash that hurts like a horrible bruise. Pain and swelling seem to be moving up my leg also. This sucks - sorry, had a fitful night without much sleep. I can't even imagine having this full body. You must be very strong.
Lizzie
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Old 05-21-2009, 11:33 AM #3
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Hello & welcome Miz Lizzie
I copied this from your intro up above.
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Old 05-21-2009, 08:53 PM #4
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Heart welcome, Miz Lizzie :)

I am Dew, Nice to meet you. I am sorry to hear you have RSD. We are all supportive of each other in this forum. You have come to the right place to ask questions, blog, etc.
Being new to RSD is difficult asd many changes seem to take place from the on sett. Remember to take a breath before you panic. Insomnia is part of the syndrome. I am surprised that Celebrex is easing your pain. Maybe inflammation..do u have burning pain issues?

Again, I am pleased to meet you, and feel free to reach out should you have concerns or questions.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 05-22-2009, 06:56 AM #5
daniella daniella is offline
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Hi welcome to the board though I am sorry of course for what you are going through too. Is this doctor you are seeing a pain doc? If not I would encourage to get into one soon as adequate pain control so you can keep moving is key in my eyes and hopefully you can find a pain doc in your area who deals with rsd another very important key. There are many other meds and treatments that you can try for the other problems like the burning. Hang in there
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Old 05-22-2009, 11:12 AM #6
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Welcome..
Like you I am newly diagnosed and have a million questions. This group is awesome! I have learned a lot by just reading the post and the new friends I have met are great.
Good luck to you... listen to your body and find a good Pain Specialist!
AJ
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