Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-06-2011, 09:52 PM #1
hortma03
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hortma03
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Teeth shrinking height

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Originally Posted by dennyfan View Post
Thanks everyone for your feedback. I have a call in to my psyciatrist & am waiting for him to call me back but it really doesnt matter. Yesterday I went & saw my primary care doc. He does almost all my meds including my pain meds because my Pm doc doesnt listen to me very well. The first thing I talked to him about was the Savella. My doc was not happy. He said under no circumstances should I be taking this medication. we have tried medications in the same catagory as this (I thought so) & & the effects were nit favorable & that was before I was taking a medication that the pamphlet says can conflict with this medication. I also got some wierd news & wonder if anyone has seen this or if this is happening to them. I have shrunk 3/4 of an inch in a year. I am going in for lab work today & after that we will see what tests need to be run. But thats a lot of height to lose in a shirt amount of time. I dont know what to think. Thanks fo all the help.
Hugs, Denny
Hi, I used to be 5'3'' and now I'm 4'10''. I was so shocked. I might be a dwarf now: Mine is happening because I'm losing bone and crikey, I have trouble remembering nouns. the pads in my backbone.(?) Spending lots of $$ at the tailor.later, val
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Old 02-10-2011, 02:20 PM #2
lovefamilypets lovefamilypets is offline
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lovefamilypets lovefamilypets is offline
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Default I've tried it

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Originally Posted by dennyfan View Post
Has anyone heard of or tried Savella? My Pm doc gave me samples of this med to try when I saw him on Friday. Supposedly its a new Fibro med. I am really hesitant to try this medication. Its a anti-depressant based medication & I dont take those type of meds well. I have tried them all & have severe side effects from them. SO I am afraid of taking this. I am thinking I am going to call my psyciatrist before I start this. I take a bi-polar med at a low dosage for sleep & depression because i cant take anti depressants. I am upset that my Pm didnt really listen to me when I talked to him about my concerns regarding this med. I would really like to know if anyone has taken this & had any problems or had good luck with it. Thanks so much
Hugs, Denny
Dear Denny,
I tried Savella for almost 2 months. My Rheumatologist (who I was trying to get a new opinion and a new perspective on CRPS) told me it was related to Cymbalta (which I had already tried and it had made me an insomniac so I was told to get off of it), but considered it to be better since it was developed later when doctors understood more about antidepressants. I am fairly sensitive to medications as well. I started out at 12.5mg and soon found that I could not handle anything over 12.5mg 2x/day because I would get so nauseous I wouldn't be able to eat. Also, whenever I tried increasing it, I felt like my burning pain would increase. It is hard to say; it could have been coincidental since my burning pain often goes up and down for no reason. Anyways, after losing weight and still not becoming accustomed to it, I dropped the med. If you do try it, I really hope it works for you! Please let us know how it turns out.
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Old 02-12-2011, 12:21 AM #3
rachel's daugther rachel's daugther is offline
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rachel's daugther rachel's daugther is offline
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Hi Sarah

My daughters PM doc just started her on this med. 12.5 for 28 days. He also compared it to cymbalta but thought it works better. She tried cymbalta but it did nothing for her pain. She just did a 5 day epidural were she found some relief in the hospital but 2 days after the precidure the pain came back. Hopfully she will find some relief with this new med.
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