Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-26-2009, 01:01 AM #1
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hey smoke and welcome to the group!!!!

i was 16 when i got RSD 11 years ago from a car wreck. i have it basicly head to toe and internal . like you i still work part time and i have two young daughters 9 and 6. i have a pump for pain control. and take zanaflex for muscle spamas . and nortriptylne for my cluster headaches.

i understand how you feel about docs i have seen close to 100 in the last 11 yrs and can count on one hand how many have actually treated me .. and it took one great doc telling me i had to chose to be stick in the bed for the rest of my life or choosing to live a different life then what i did. and i chose life. it may not be as normal as some but i try.

hang in there buddy. about non invasive there is a lady here named diana that has her own hyberbarric chamber and she can talk to you about it.

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Dew58 (05-26-2009)
Old 05-26-2009, 03:27 AM #2
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Smile welcome to the forum

Enjoy the forum. It is a wonderful resource for information and support. I am sorry that you have RSD.

You apparently see a pain management specialist with the list of meds you take everyday. I hope you have relief from them.

I am Dew, and it is nice to meet you.
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 05-27-2009, 02:36 AM #3
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Quote:
Originally Posted by Dew58 View Post
Enjoy the forum. It is a wonderful resource for information and support. I am sorry that you have RSD.

You apparently see a pain management specialist with the list of meds you take everyday. I hope you have relief from them.

I am Dew, and it is nice to meet you.
I don't see a pain management specialist, family doc, but he's apparently up on it. As screwed up as it is, as long as I work, move, etc, the pain stays localized in my left leg. I've been off work, laid off for we have no orders coming in, and I screwed up and just laid around for a bit. Well...that was really stupid, the **** spread down my leg and it felt as if a nail was being driven into the top of my foot, as well as for some reason where my leg meets my butt cheek. I ate more pills and fixed the roof, and although it hurt more in my knee, it went away from the two new areas. I feel so horrid reading about folks who have had it go whole body, jeez, that is my nightmare, and as I think about this situation, and read of organ involvement, well...I am really scared. I, along with 150 others, might get permanently laid off tomorrow, goodbye insurance, and I know I can't keep moving without the meds. Too much agony. I dunno what I'll do then, but I know it ain't good. Dammit.
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