Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-03-2009, 10:12 AM #11
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Heart Carrie.........



Peaceful Thoughts and Loving Healing Energy Sent Your Way,Carrie.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 06-03-2009, 04:28 PM #12
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Carrie,

Dear Girl!
You're gonna have to let us know, "overall" did the thing help or not, and exactly what was it?

(Were they making you a "Test Dumbie")?

You of course, need to give it some time, I reckon...

Here for you always...

Pete
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Old 06-03-2009, 09:34 PM #13
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it made it worse but it has kinda evened out.. back to normal LOL having hard time in the legs but theres nothing new. i have had to have blood work yesterday because either the nortriptline or something has caused my to have horrible brusing from nothing cramps in legs and arms. and issues with my heart rate. i have ventricular tackicardia anyways but its been super high .. like 200's steady so had to go to cardiology also.. .. still alive and kickin so i guess thats good right

talk soon
carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 06-03-2009, 10:21 PM #14
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HEART,
Still goin' out to ya!


pete

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Old 06-03-2009, 10:41 PM #15
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Dear Carrie -

I guessing your pain doctor put you on Nortriptyline (a tricyclic antidepressant) as part of your pain control regime. And yes, tachycardia is listed as a known side effect of the drug. So I can't imagine that someone put you on it if you already had an irregular heartbeat, but apparently he/she did!

I once spent the night in a monitored cardiac be with drug (Ritalin) induced tachycardia, but my heartbeat was just fluctuating at rest between 85 and 115 BPM. I can't imagine how scarry it was being in the "200's steady."

I trust it's down now, but I wonder how well your heart rate and BP were routinely monitored along the way? I know in my case, it was not at all.

hang in there,
Mike
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Old 06-03-2009, 11:55 PM #16
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not PM a neuro that i went to see for the cluster headaches my issues is that i cant take regular migrain meds ie triptans becuase i stop breathing. but my normal with meds is 120-140 and i cant tell or it doesnt effect me because its been like this for the last 11 yrs and i have grown a custom to it. so over 160+ is when i get light headed and cant breath right and its low motion. because of my rsd and the way it has effected me i dont ever pass out period .!!!!! i have been awake at 210 HR and 20/0 BP no lie. i just dont pass out period with the way my sympathetic system has been effect and autonomic .. its crazy and i wish that i would be out like a rock when this happens but im not that lucky. i should be called murphy because what can and will happen will always happen to me period.
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
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Old 06-04-2009, 02:23 AM #17
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I stand corrected.

Mike
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Old 06-04-2009, 12:06 PM #18
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Hi Carrie,

Just wanted to let you know, you are in my thoughts and prayers gentle

Kate
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Old 06-04-2009, 06:09 PM #19
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thanks kate i appericate it tons !!
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 06-04-2009, 08:54 PM #20
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Hi Carrie! So glad to hear everything has evened out. Will be prayin it stays that way
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