Hi Pete,

Thanks for starting this post. I did add RSDSA.org as part of my e-mail signature. I hope/pray it does educate some people out there.

Kate

ok i know im late in this post but been away a couple days. no need to say sorry i know what you mean. i dont crps either it sounds stupid. and your right RSD isnt like saying CANCER . you here that ad people know what you are goin thro .. RSD nothing its like saying hey pigs are flying. (maybe not the best anaolgy but thats all i got )

yes i trust me doc and they only do what i ask other wise i am managed like you talk about. unless its like how it is now. and i ask them to try something that isnt meds. i dont like to take meds and im horrible at it period and everytime i take something new something bad happens
i think that this is a great post because you are able to put into words what most of us are thinking

thanks a billion

carrie

I think,, that unfortunate as it is, our friend "DEW"s problem's with the Opana is more indication of this "test dumby" syndrome, that our docs and ourselves must deal with.

It takes so dam long, often just for a proper diagnoses.
Then, it takes so dam long, to find out what is the proper course of treatment, and to "fiddle" with it, and get it tuned to our "ever changing" bodies age and conditions!

Besides pain, we adjuncts for the "main pain reliever".
then, we need something for anxiety, that life or pain causes.
then, our sleep problems.
Then, our groggy problems.

It just goes on and on.

And, if you have TOS, TBI, discs, depression, and on and on (that's just me), the fun really starts!

Finding the right doctor is like a needle in a haystack!

Then, so often we need an attorney..

Then, we have disbelieving family / friends...

then......



Sorry if I'm repeating my rant...

pete
Asb

I think even with the right doctor, even if you have a knowledgeable doctor, that it isn't obvious to treat RSD - at all. It is so fickle a disease in itself that we can't be other than "test dummies" (I've started to resent the words). Far too little is known about the condition. So what can be done? It is trial by error. No more, no less.

Also that is why I never decide on a treatment that day or the next other then a med. I go home process and then make my informed choice. If I did everything I have been suggested I can't even imagine the state I would be in and don't want to.