Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-30-2009, 10:21 AM #6
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Location: Belgium, Europe
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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At least you're passing awareness bills! That is something!!!

Where I live, this odd tiny itty bitty part of Europe (Belgium), they are so behind in everything they're still using the wording of some 50 odd years ago when "it" was called "algoneurodystrophy", and when even less was known about the condition. It certainly wasn't an accepted physical condition then - but nothing has changed! The laws about refunding things to disabled people didn't move along with the times. That means that people are pretty much on their own when they get this or any other kind of disease. Only 6 pathologies are okayed in the healthcare law, if you get anything else, or are in an accident and are injured pretty badly, you fall out of the net and are left to get your aids yourself in any which way possible. It's far worse than having just RSD added to the picture here, far far far worse!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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