trying to get out all the info when the brain is scrambled.....the surgery I have to have is not for the "nerve impingement". Way back when I had the trapezium bone removed in my hand and a spacer put in. When I got the osteomyelitis it caused the spacer to "disappear" and the bones to shift. My thumb now looks like it starts towards the middle of my hand. If I don't have the surgery to put everything back in place I will lose all function of my thumb. The surgeon is not the new neuro doc I saw. Believe me I am not rushing into this and have gotten second opinions. Thanks for the advice so far.

Kilikina,
You'd be a fine candidate for the "Hand Center" @ Jefferson, in Philly.
I wouldn't let anyone else touch my Shoulder to my hands.

I have carpel tunnel, ulnar nerve and TOS.
I still won't opt for an operation, but, if I were to,
This is where I'd surely go.
Check them out on the web...

(I've known people who would have surely "Lost their hands" in accidents at work, etc.
And they were "saved" by the doctors there.

Pete
Asb

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I got that.

I meant if you do have a nerve impingement problem, maybe a future surgery could help that. That would be a better prognosis than having RSD in your hand. That could be good news, but I wouldn't take the word of this new neurologist, because what he has told you so far makes no sense

I'd certainly go for a second opinion on that hand, esp. since they suggested surgery, which is a big no-no for RSD. Better be sure before surgery than after. Take it from someone who had all the signs and symptoms of RSD but who wasn't diagnosed before laparoscopic kneesurgery... I was diagnosed about a year after. My leg went totally purpleish/greyish/black after surgery, depending on how long I was held upright. All they could do was order me to "go back to bed". It didn't bode well for the RSD, on the contrary...

So be sure before you let them do surgery.

like everyone else said get a new doctor and as fast as you can . and no surgery .. my rule on surgery if i will die if i dont have to have it then i dont need.. but i have been in this boat of you do and dont crap .. hang in there

carrie

I am well aware of the surgery with RSD is a no-no. I had 2 possibly 3 unnecessary surgeries before I was accurately diagnosed. Dx. took 2 1/2 years after my first and triggering surgery. I am in a damned if i do , damned if I don't position with my thumb. I can't afford to lose total use it.
I saw my PM doc today, and told her of my visit to the new neuro doc. Her immediate response was change doctors. I have an appointment with a new "new" neurologist. Will keep you all posted. Thanks again for everyone's responses and support.