Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-04-2009, 10:03 AM #6
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Finz, i'm so sorry to hear about everything that you are dealing with right now and really hope things start setteling down for you real soon!!

I remember when my RSD first spread, I was terrified and got VERY depressed and frustrated which I guess is only 'natural' when dealing with something so devestating.

My RSD started in my left leg and then spread to my right arm after another injury and to my left arm earlier this year.

There was no denying that my RSD had spread as I had all of the classic symptoms of RSD and my arm went purple and black within a matter of hours after the injury. I saw my PM Doctor the day later and he diagnosed a spread of the RSD and I had to go and have intense Physical Therapy as my arm locked up into a fist.

Has anyone ever mentioned a condition called Dystonia to you? Some of the symptoms that you described with the tennis elbow sound similar to it. I have Dystonia in my left leg and right arm and it has a pretty bad complication of the RSD. My leg is rotated out to the side in eversion and my arm locked into a fist for nearly 6 months. I have tried all sorts of muscle relaxants to try and get it to go away but none have really helped and we are now looking at Botox as a last resort.

I would definitiely look into the Dystonia if I was you as it is a complication of RSD that some people have to deal with and can get overlooked or misdiagnosed quite often.

I really hope that you can get an appointment with your PM Doctor real soon. It's horrible that so many people have to wait so long just for WC and things! Its really important that you are treated as quickly as possible with RSD and they should know that!

I'm sorry that I cant help you that much. Please know though that you are in my thoughts and prayers and if you need anyone to chat to, I am here for you as I DO understand some of what you're going through!

Take care of yourself
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