I have a couple of questions after reading everyones posts. First what does rsd do to your eyes? Does it blur you vision, make your eyes hurt, make allergies diagnosed long before I was diagnosed with rsd? When you have tightening in your chest is the pain there all the time or can it come and go? As far as the bladder part, do you get bladder infection more often? I have never had bladder infection until here just recently so I was just wondering. Also the pain in the lower abdomen what might that be? I was told a few years ago that I had cysts on my ovaries and did they ever hurt like the dickens, but I hadn't had any real trouble ever since then,but I am getting major pain in the lower abdomen where the female organs are located and boy when it hits I can't hardly breathe it hurts so bad. Is there a possibility that rsd is causing some problems with my cysts or what else could it be?
Thank you for taking the time to read my questions and hopefully you can help me.

Sincerely,
Tracy

tracy

mine started with bladder already had cyst on overies before RSD the rsd made them worse. and with the bladder i got really bad infection then i was dx with interstitial cystitis then the kidneys.. the heart thing was the first to go then asthma.. was a runner and a gymnast before rsd. never had breathing issues. and have the lower abd pain

i would get it checked.
now rsd in the eyes to me feel like there is sand always and their dry my eyes stick together and my vision is that of an 80yrs olds im 27

Just wondering have u ever been dx with endo or ando, That's what I had in my late 20's and had to have3 laparospies and them ovary removed and then total hysterecmtomy. Every month I would have a cyst come up and pop or never go away and left scar tissue/ Then a few years later andometriosis was found when they went in for total hysterc.. My Surgeon said had alot of scar tissue on my tail bone to female organs.

have endo.. wont do the surgery!! my friend has had it for years and has had 4 surgeries in 2 years.. and is healthy .. and having issues. so no thank you!

Can't say I would do it either!

Yes I had a pelvic ultrasound and it just showed cysts is what my gyno said. No signs of endo. But thanks for the question. and thank all of you for responding to my questions.

Sincerely,
Tracy

[QUOTE=screwballpookie;519392]I have a couple of questions after reading everyones posts. First what does rsd do to your eyes? Does it blur you vision, make your eyes hurt, make allergies diagnosed long before I was diagnosed with rsd? When you have tightening in your chest is the pain there all the time or can it come and go? As far as the bladder part, do you get bladder infection more often? I have never had bladder infection until here just recently so I was just wondering. Also the pain in the lower abdomen what might that be? I was told a few years ago that I had cysts on my ovaries and did they ever hurt like the dickens, but I hadn't had any real trouble ever since then,but I am getting major pain in the lower abdomen where the female organs are located and boy when it hits I can't hardly breathe it hurts so bad. Is there a possibility that rsd is causing some problems with my cysts or what else could it be?
Thank you for taking the time to read my questions and hopefully you can help me.

On the eye condition. My rsd started in my leg and anyhow a year later I developed a severe eye condition where I was breaking out in sores inside and out,severe dry eye,developed pain behind my eye/migraines,extreme floaters. Was in crying pain from this. I went to 11 eye specialists,40 plus eye apts in 1 year,neuro for mris,allergist,rheumo etc etc. Saw a couple specialist who deal with rsd one many here have heard of Dr Stanton Hicks. The reason is the eye condition did not get better with all the eye meds,orals,etc and the pain did not go with what my dx of dry eye and bleph. Anyhow I was told and even by my current pain doc that the eyes are not effected by rsd and it is in the limbs. Now how this can be when like others stated here that they have full body including organs and I know a gentleman the rsd started in his eyes I do not know. I guess for me what ever you want to call it I hope that what the treatment is for the rsd will help with my eyes. I hope I made sense.
I can also relate to that my gramps who is 86 is healthier then me and more active. I am 30. I used to be sick with a flu prior to my rsd I would say every month with a fever for at least 2 years. I would be better for a few weeks and then again hit with the flu. I don't have that now but I do get so many infections like ears,eye,skin. Again told a fluke. Like how? One thing if older not when young. Ok many thoughts as my rant is over

Hi Tracy,

My vision is blurred when my pain is flared. I know one of my medcations causes this as a side effect. I get tighness in my chest when my heart is beating too fast. Which happens when my pain or anxiety is up. It isn't present all the time. I get pain in my pelvic area that comes and goes (I also broke my pelvic bone in a car accident years ago)
These are good conversation points to share with your doctor. Please, write them down and take them with you to your next appt.
I hope you get answers that will help you.
Take care
Sherrie

OK,
I'm a Boy.
A Man. (WAS) A MANLY Man!
GRRR!

Well, whatever....
It seems that this organ involvement is mostly female, except for heart, and lungs.
I mean, well, I'm shy....
My Organ involvement is not Female...

My "Testosterone" is low. And, I'm far too lazy to get it checked again for the jillianth time. I KNOW it's low! (Don't wake up "Happy", ya know? EVER, HARDLY "THAT'S A JOKE") can I be any more real than that?)
Got no "Drive" , and, I'm used to FOUR WHEEL!

My heart, Well nobody ever checks it, I get on that thing at rite aid, and it always reads high. So?
I try again. High! So? What' that mean?

Hey, I have a TBI!
Isn't this all normal?
the gland under the gland tells my glands "not to be "happy", and my bp to be high.
That's what I figure....
Am I figurin' too much?

Dam.
Sometimes I can be OK,
Sometimes I can be sooo stoopid!

Anybody got any help?
I know, talk to me neuro doctor...

I'm not shy....... yea. right.

Pete
Asb

Hi Pete,
This is a beast isn't it. I just wrote Dew a long message. When I was first diagnosed with RSD, (after having it 4 years) I started doing research and found a RSD Doc in Florida, called Dr. Hooshmand. He is retired now, but still has his website up and really has some good information in it. www.rsdrx.com
There is a part on it called puzzles-it's about 140 questions from patients and his answer. On is on Organ Involvement#34 . There are other questions regarding female organ involvement puzzle #127-maybe something there can be informative.
We just had friends visit for 10 days from Oregon. They come every two years. They both are in the medical field. They both are on hormone replacement therapy, thru a medical Dr. that specializes is this and uses a compounding pharmacy to fill the prescriptions. The prescriptions are specifically made for 'you' after having your hormones tested. The hormones are made from natural products, whatever that is. But, I have just seen a Dr. that has been doing this for 25 years. This has been on the Oprah Show and Dr. Phil Show. Many people have said their lives were improved. So I've giving it a go. I see my Dr. in a couple weeks again.
Anyway, This couple that visited are BOTH on the hormone replacement therapy. They are both 61. He is on testosterone. And likes it fine.
High blood pressure is one of the bad parts of having RSD. Most of us are on HB medicine. RSD is an autonomic disorder, which means the involuntary organs are involved, like the heart. Circulation is a big factor. Both are factors in what you are talking about. I had had never had high blood pressure before RSD -exercised 6 times a week. more like a fanatic, miss that tennis, water skiing and snow skiing especially. These RSD meds also cause weight gain, so it's really important to exercise and try and keep the weight down.
Hope you like Dr. H's website. Lots of good information on it. I've copied some of it for my Dr. He is very open to reading. I'm going to try his new clinic with the HBOT. The HBOT is important part of increasing circulation, getting blood flow to all parts of the body. Have you ever tried it. My Dr. built two clincs within 5 miles of our home and the only HBOT outside of hospitals in Arizona.
Take care, enjoy your posts and caring thoughts for others, especially our 'special' Ali. Your friends, loretta