Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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View Poll Results: Have you been diagnosed with Tinnitus and/or TMJ along with your RSD?
Do you have Tinnitus with RSD? 4 33.33%
Do you have Tinnitus with RSD?
4 33.33%
Do you have TMJ with RSD? 5 41.67%
Do you have TMJ with RSD?
5 41.67%
Do you have all 3 - TMJ, Tinnitus and RSD 3 25.00%
Do you have all 3 - TMJ, Tinnitus and RSD
3 25.00%
Multiple Choice Poll. Voters: 12. You may not vote on this poll

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Old 03-30-2009, 09:52 AM #1
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Default RSD, TMJ and Tinnitus?

I've seen a few people here talk about having either TMJ and or Tinnitus along with the RSD. From what I've been reading, it seems that there is a possible nerve-inflammation response connection with each of these conditions.

When my rsd flares the TMJ and Tinnitus also flare, do you experience similar responses?

I'm curious about how many of us have these 3 conditions? If you do have them are they all on the same side of your body?

My TMJ is pre-existing to my RSD & Tinnitus diagnosis, but since I got rsd my TMJ has progressed with arthritis and crepitus in the jaw joint. I'm curious to learn if others have experienced this same progression?
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Old 03-30-2009, 02:12 PM #2
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I had tinnitus all my life. I noticed as rsd progressed so did it. It has gotten a bit worse. As long as there's some kind of noise it's not too bothersome. It doesn't seem to be any worse or better no matter what my pain level is. I feel lucky it's not really bad. Now that I've said that I'm sure it will worsen quickly and the ringing will become unbearable. LOLOLOL

Hugs,

Karen
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Old 03-30-2009, 05:24 PM #3
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Default RSD with tinnitus

I also have tinnitus with my RSD. The pain management doc said it's from the medication - Lyrica though. May never know since I started Lyrica the day after the injury.
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Old 04-01-2009, 10:08 AM #4
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Thank you for your comments and participating in my little poll.

I'm doing some more research on this and I'm hoping to see more people respond.

More to come...

MsL
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Old 04-01-2009, 10:27 AM #5
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I've developed a real intolerance to loud noises - voices, music, TV's, etc. since my RSD has worsened over the past winter. If I can't get away from them I end up with a severe headache. I don't know if that is the same as tinnitus.

I was walking through the city a few evenings ago and a taxi cab honked his horn right next to me, I thought my head was going to explode.

I don't have TMJ, although I've slept with a mouthguard for the last 20 years or so because I grind my teeth.

Sandy
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Old 04-01-2009, 03:42 PM #6
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Tinnitus is a ringing in the ears. With some, like myself, it gets very loud and bothersome if it's silent. I have to have some "noise" in order to keep at bay. Others hear the ringing loudly all the time with no let up whether there is outside noise or not.

Most of us rsd'ers have an intolerance to loud noises now because it increases the pain a lot and can cause us to feel those electrical zaps, or as with you, severe headaches. I'm sorry you have that happen to you from loud noise. I can't imagine!

Hugs,

Karen
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Old 04-02-2009, 10:13 PM #7
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I was told Long ago, that MY "ringing in the ears" was caused by NSAIDS. That being then, I cannot speak for newer drugs. But, once an ins. company nurse wanted my blood tested, to be sure I was in fact taking my meds.
My doctor objected, because I had complained of the "ringing". An obvious side effect. (For me).
I have RSD, TMJ, but not so much tinnitus any longer, I don't take that form of medication, now.
(Check your drug side efx).

Wellness to all,
Pete
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Old 04-08-2009, 12:36 PM #8
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Quote:
Originally Posted by Mslday View Post
I've seen a few people here talk about having either TMJ and or Tinnitus along with the RSD. From what I've been reading, it seems that there is a possible nerve-inflammation response connection with each of these conditions.

When my rsd flares the TMJ and Tinnitus also flare, do you experience similar responses?

I'm curious about how many of us have these 3 conditions? If you do have them are they all on the same side of your body?

My TMJ is pre-existing to my RSD & Tinnitus diagnosis, but since I got rsd my TMJ has progressed with arthritis and crepitus in the jaw joint. I'm curious to learn if others have experienced this same progression?
HI , COULD YOU TELL ME WHAT IS TMJ ? NEVER HEARD OF THIS GOD BLESS KIMMIE
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Old 04-08-2009, 12:42 PM #9
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Quote:
Originally Posted by AintSoBad View Post
I was told Long ago, that MY "ringing in the ears" was caused by NSAIDS. That being then, I cannot speak for newer drugs. But, once an ins. company nurse wanted my blood tested, to be sure I was in fact taking my meds.
My doctor objected, because I had complained of the "ringing". An obvious side effect. (For me).
I have RSD, TMJ, but not so much tinnitus any longer, I don't take that form of medication, now.
(Check your drug side efx).

Wellness to all,
Pete
ASB
Hi Pete,

I was having a very high pain week. ( I don;t have RSD, but a progressive back condition) I rarley take pain meds, because they mess me up. But I had taken some Tylanol for 2 days and had more than my normal 1 cup pf coffee.

YOWZA...the bells were ringing. I had to keep checking to see if the phone rang. Weirdest thing. Drove me nuts..more than I am already.

So watch caffiene too!
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Old 06-05-2009, 12:46 AM #10
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Quote:
Originally Posted by SandyRI View Post
I've developed a real intolerance to loud noises - voices, music, TV's, etc. since my RSD has worsened over the past winter. If I can't get away from them I end up with a severe headache. I don't know if that is the same as tinnitus.

I was walking through the city a few evenings ago and a taxi cab honked his horn right next to me, I thought my head was going to explode.

I don't have TMJ, although I've slept with a mouthguard for the last 20 years or so because I grind my teeth.

Sandy
Hi Sandy, I am new at posting online, will do ok I hope. I have a migraine, TMJ, RSD (and neck at times) kinda mix going on that sounds like you. I can't take the noise. It is the worst during a migraine or bright sunshine (that is trying to push me into a migraine). Do you have the noise problem all the time? A neurologist could help you figure out the type of HA you are having. I am taking a time release of Verapimil that has helped. Does your dentist check your bite with and without the night guard regularly? Take care. Hopeful Alaskan
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