Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-15-2006, 11:37 PM #31
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everyone,
this is abbie...
my friend has me reading the msgs on here...
i wanted to let you know... im still here... holding on...
nothing is different... but i am trying...
thank you...
hugs to all,
abbie
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Old 12-15-2006, 11:49 PM #32
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awww sweety...i am so glad you have k ther with you!!

one day at a time. hang in there.

(((((abbie & k)))))
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Old 12-15-2006, 11:56 PM #33
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Hi And Welcome...i Am In The Same Boat As You And It Sure Is Shaking So Much These Days That I Do Want It To Sink....but.. Everyone Here Is Right..hang In There....i Have Been There For 13 Yrs Now Anad Each Day Is A Struggle But...i Refuse To Leet This Disease Win..so I Vent Here, Cry Inside Alot And Try To Make It Thru Each Day.. Good Luck And Keep On Venting..it Does Help..you Are Not Alone..... Peaceful Hugs....moonstar (linda)
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Old 12-16-2006, 03:02 PM #34
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I'm losing my grip....
I don't know what to do...
Thoughts aren't good...
I know what I want to do....

I'm sorry....but I had to say these things...
thought maybe getting them out might help...
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Old 12-16-2006, 05:25 PM #35
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((((((Abbie)))))),



'Thoughts' are just 'thoughts'. What's important is what we DO. If you're anything like me, you've got thoughts running around in your head like gerbils on an exercise wheel

Just let 'em run around as much as they want. Every once in awhile throw them down on a piece of paper or in a blank book.

And then DO what you NEED TO DO to get your balance back. To get your life back.

Most of have been affected by "gerbil-brain" at some time in our lives. We're all here to support you and listen to you as much as you want and as long as you want.

Hang on tight. And let people CARE FOR YOU. BIG HUGS.

Barb
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Old 12-16-2006, 08:56 PM #36
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You are still in our thoughts.

Have you made any calls to the hot lines { just to talk with them?}
or even to other doctors- to demand better pain control and help for depression?

are you eating OK ? and maybe taking some multi vitamins & B complex for stress?
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Old 12-16-2006, 09:15 PM #37
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Jo,
I spent most of the afternoon, eve, and night yesterday with my doctor... chiro/acupuncture to try to drop the pain levels... they came down and then went right back up...so he kept at it as much as he felt was safe.

we are still looking for a pain medicine that will work but won't cause an allergic reaction.... so far no luck.

antidepressants... still taking cymbalta but doc is looking for one we haven't tried yet... cymbalta is about the 5th one we've tried.

eating...not really...i force myself but get sick shortly after.

vitamins... i take 3000mg vitamin c, 200mg - B1, 200mg - B6, 1200mg - NAC.
can't take a multi -- sounds crazy but i get severe sore throat when i take one for more than a couple days.

as far as other docs... i've been to about 15-20 and they all send me back to the ones i am with...tell me the docs i have are the best for treating me.

I haven't made any calls... i don't have phone access.... and driving to one really isn't a good idea...
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Old 12-16-2006, 10:53 PM #38
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((((((Abbie)))))),

HMMM!!

I'm wondering if you're allergic to the fillers in the drugs. Might be a good idea for you to pop over to the Gluten Sensitivity / Celiac Disease forum and read a little bit.

I know pharmacists can compound things and leave out some of the junk that people are allergic to.

Allergies could be affecting your ability to eat too. HMMMM!!

Make a list of all the drugs that you've taken with the side effects and show it to your pharmacist. See if they have anything in common -- like ingredients, fillers. Make sure you let the pharmacist know everything that you're taking, including vitamins and minerals. There could be some kind of interaction going on there.

I know when I had my gall bladder out, they gave me oxycontin for a very short period of time. I was drinking one of those grapefruit flavored low-calorie drinks. For some reason I was THIRSTY and I was CRAVING grapefruit. The grapefruit extract in the drink apparently killed off the ability for the oxycontin to relieve pain. I've since found out that you shouldn't take grapefruit juice with a lot of different meds 'cause it negates the effect. Weird, huh.

I used to go to my EX-chiropracter -- he moved -- I was his last appointment on Friday afternoons. He used to spend an hour and half with me. He even massaged my FEET. Man, I *LOVED* that guy. If I had found him before his girlfriend did -- HUGE SIGH I used to leave there so calm and relaxed and the pain was all gone --AAAHHHHH!!

I was just wondering if you could get the last appointment of the day if that would help

I *KNOW* you're gonna figure this out. You've just got to see the patterns and then find a solution. Easier said than done, right!!??

I hope you sleep well tonight. And I hope your pain levels are way down tomorrow. BIG HUGS.

Barb
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Old 12-17-2006, 03:50 AM #39
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Hi Abbie,

That's the way, little by little, day by day...well done; Moose's suggestion is *really* good - with a bit of luck it might start the process of determining what's causing the allergy, how clever. The quicker we can find a way for you to deal with the pain, the better. Thanks so much for keeping in touch...
xxx all the best
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Old 12-18-2006, 04:03 PM #40
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Hi Abbie!

I just wanted to let you know ive been thinking of ya

Hope things are easing up for ya, and know im keeping up the prayers.

Love ya sooooo much
Big hug
(((((((Abbie))))))))

Allen
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