Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-06-2009, 10:28 AM #1
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Hi Debbie,

I used to talk to someone on another forum who tried Dr Rhodes STS treatment and it worked a little for her in the early days but she then became worse again and had quite a lot more pain than before the treatment. I'm not sure how she is doing now but she was looking into another doctor who she 'believed' could possibly "cure" RSD by doing several different things to her body.

My mum took all of the information on the STS treatment to my Pain Management Doctor to look into and he said that he had never heard of the treatment before and that he was also a bit baffled as to why it would help other conditions, not just RSD.

My Doctor adviced us to stay clear of the treatment as he had never heard of it before and there wasn't that much evidence that showed that it would help. We didn't really have the money to go for the treatmnet either as it is only in Texas and would cost a LOT to fly over there AND stay there for the treatments, return back for the STS reprogrammed etc.

I'm not sure what to make of the treatment really. I personally wouldn't try it until it was a wide known treatment for RSD.

I really hope that it helps you should you wish to try it! Just do a lot of research into it before you decide to go ahead with it and weigh up the pro's and con's!

Take care
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Old 06-06-2009, 02:20 PM #2
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As we all know, none of us react the same to therpies, treatments, or medicines....

Here is my story regarding use of STS:

I was sent to a physical therapist who had an STS machine and had been trained to use with Dr. Rhodes protocol.

I DID NOT have a good reaction to STS therapy.

In a matter of 45 minutes from the beginning of use my pain went from a 3-4 range to a 10+. I was crying and begging for someone to cut off my leg. This was the worst pain I had ever felt!!!

The pain had spread from my foot, up my leg, and into my torso. Temperature of my foot, leg, and torso turned extremely cold and turned a dark maroon purple color. Swelling was also severe...felt as though my skin was going to burst open.

My pain has never went down and only continued to spread after this happened.

I would hope everyone would research as much as they can on this before trying... Because of what happened to me, I would NEVER recommend this for anyone with RSD!!

Here is a link to Dr. Rhodes Clinic:
http://www.paindefeat.com/wiki/PDFT/HomePage

Wishing you all the best!!!

Abbie
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Old 06-06-2009, 02:55 PM #3
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Thank you both for your insite...I will definitely stay away for now untl much more is known about his protocol- I JUST WiSH THERE WAS SOMETHING!!


Deb
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Old 03-23-2011, 06:57 PM #4
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Abbie - My daughter Emily had a terrible experience with Dr Rhodes and the STS machine in 10/2009. Everytime I ask critical questions I am "shouted" down by a handful of Rhodes "zealots".... Have you come across anyone lately who has seen Dr Rhodes??

Thanks,
Jason
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Old 03-23-2011, 09:06 PM #5
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I went to Dr Rhodes in Sept with another RSDer. Neither of us had any improvement However, I met someone who was having great success. Like everything else...works for some. He gave the refund promised when I returned the machine,

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Old 12-27-2012, 08:03 PM #6
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Quote:
Originally Posted by debbiehub View Post
I went to Dr Rhodes in Sept with another RSDer. Neither of us had any improvement However, I met someone who was having great success. Like everything else...works for some. He gave the refund promised when I returned the machine,

Debbie
Debbie thanks for the honest assessment, where is his office located?
Thank you.
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Old 03-23-2011, 10:18 PM #7
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Quote:
Originally Posted by JOHN SCRIBE View Post
Abbie - My daughter Emily had a terrible experience with Dr Rhodes and the STS machine in 10/2009. Everytime I ask critical questions I am "shouted" down by a handful of Rhodes "zealots".... Have you come across anyone lately who has seen Dr Rhodes??

Thanks,
Jason
Hi Jason, My daughter went to Dr Rhodes in Nov 2010, his machine has not helped her at all. He keeps telling her its the oxy's fault, or some other medications fault, but not the plain truth that it just doesn't work on every RSD patient...She has endured 4 and 1/3 months of more pain...her RSD has spread to her feet now....She and her husband are not using it much anymore or hearing from Dr Rhodes as much either...I am so sorry about Emily's experience.....

Barb


Debbie, it was good to hear you got your money back I have been wondering about that..I don't know if my daughter and her husband will send the machine back, I hope they do....How are you doing? Thank you for your responses in my previous posting..My daughter continues to decline and pain continues to increase...and spread...anyway thank you all for listening..

Barb
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