Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 06-13-2009, 01:22 PM #1
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Hi. That is nice of you with the cancer walk. I think you should feel very proud. I have been able to do so much more since I got RSD but my pain goes in such extremes. I also have seen 4 plus pain specialists and couple that are known for rsd treatment and they are not into the meds you are stating. I have vicodin or darvocet but when my pain gets super high it is just not enough that is why I am hoping those meds that are like neurontin will get me to a better point. The treatments like blocks actually make me worse so right now an item like scs is way on hold. I do feel moving is key but finding a balance. I just don't get the delayed aspect of it as well.
On a side note Mrs D I took the Aleve liquid gel pills today and I think they are better then the other kind too. Thanks so much.
Many thoughts and I hope you have a good day
daniella is offline   Reply With QuoteReply With Quote
Old 06-19-2009, 11:05 AM #2
Smoke_666 Smoke_666 is offline
Junior Member
 
Join Date: May 2009
Location: South central Pennsylvania
Posts: 97
15 yr Member
Smoke_666 Smoke_666 is offline
Junior Member
 
Join Date: May 2009
Location: South central Pennsylvania
Posts: 97
15 yr Member
Default bummer

Quote:
Originally Posted by daniella View Post
Hi. That is nice of you with the cancer walk. I think you should feel very proud. I have been able to do so much more since I got RSD but my pain goes in such extremes. I also have seen 4 plus pain specialists and couple that are known for rsd treatment and they are not into the meds you are stating. I have vicodin or darvocet but when my pain gets super high it is just not enough that is why I am hoping those meds that are like neurontin will get me to a better point. The treatments like blocks actually make me worse so right now an item like scs is way on hold. I do feel moving is key but finding a balance. I just don't get the delayed aspect of it as well.
On a side note Mrs D I took the Aleve liquid gel pills today and I think they are better then the other kind too. Thanks so much.
Many thoughts and I hope you have a good day
College is out for the summer. Few pretty girls...lol...as our team didn't even get enough people, I decided to walk from town to the event, as opposed to walking the track. Mistake. Up hills, down hills, pushing the baby carriage, well...talk about pain. Damn, it hurt then, and way more later, for the balance of this week.

As far as the 'pain specialists', I find it ironic that the last thing they want to do is stop the pain. 'Here, let's stab you in the spine','here, take this pill, the side effects are horrid, and it only works 30% of the time, but that's what we're gonna do','have some physical therapy, oh, you can't take ibuprofen, too bad, no painkillers for you, suffer'. I've been to two of these people and never have I seen such a doublespeak in the name of the clinic alone. I personally believe they are fully funded by the drug companies to see what the drugs do to those who have no other choice. Find a good GP. The good docs usually do things in this order; 1) get a firm diagnosis 2) try meds 3) try other meds 4) try other meds The meds get more dangerous as they go down the list 5) make damn sure of what you have 6) try something invasive, via a pain specialist. The Pain Specialists do it in the reverse order. The first thing they want to do is stick your spine. If that fails, they want to operate. If you refuse or that fails, they want to give you the least effective med with the most risk of side effects, and only once they've run out of options do they MAYBE give you an actual painkiller. More likely, they refer you to someone else, who does the same thing they did. Yer best bet is to avoid pain specialists altogether, in my experience anyways, and find yourself an old fashioned doctor, usually, although not always, someone who has been in the profession for quite a few years. The young docs are unconcerned, it seems, with how badly they can ruin your life,(kickbacks?) whereas the older docs seem to actually care if they hurt you whilst trying to help. I had one 'doctor', and I use that word very loosely, after I had bounced an engine off my knee some years back, tell me she never prescribes opiates, and never would. "You will get addicted with just one dose of vicodin." That is her actual quote. She should be stripped of her license. As I left her office, I saw her drug rep come in. Upon being told, by me, that "Your dealer is here", she turned a color of red one usually only sees in a crayon box.
Smoke_666 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AintSoBad (06-19-2009)
Old 06-19-2009, 01:15 PM #3
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Smoke,
We've got to watch for those "Docs" or practitioners, who want to stay in the bidness....

I mean, if they help us, we still must return for scripts, right?
But, they're really starting to make a "bidness" out of this RSD, Fibro, etc. with blocks and all sorts of nonsense, that is never ending..

I"ve said this from the first day I was on board.
RSD is "Managed, Not Cured".

A Good doctor knows how to do that, and should act as if you're paying out of pocket!
Not trying to "clean out" an ins. companies reserves!

Pete
Asb
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daniella (06-19-2009)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
?? Hydrocodone-APAP (10-325mg.) and Naproxen (Aleve) Oopsalot Medications & Treatments 1 11-01-2008 03:33 PM
Chronic pain can alter the brain-scans show activity in areas that should be at rest fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 4 02-10-2008 12:46 PM
Fun, laughter, activity, and pain LizaJane Peripheral Neuropathy 7 04-06-2007 09:19 AM
Activity Levels & Pain optimumeg Peripheral Neuropathy 6 12-31-2006 09:03 PM


All times are GMT -5. The time now is 04:37 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.