Hi Rogerc,
I found when my rsd was spreading I noticed pain obviously and a sort of sunburn feeling, as well as some extra sensativity in the area.. sometimes I felt what felt like little bugs running under my skin, other areas it felt like cold water trickling down an area.. it's very weird what your nerves can do, I realy thought I was going crazy.

The best advice I can give and I think others here would agree is to start taking vitimin C (1000 mg) and alot more antioxident type food and drinks.
Sounds too simple I know but try it, studies have shown that vitimin C has actualy stoped 75% (3/4) of RSD from initaly happening after radial wrist fractures in multipal hospital studies when taken for the first 50 days.
I found out about the studies after my RSD had spread unfortunatly, but vitimin c and other antioxidents still help quite emensly with the inflamation and pain I find.

Good luck Rogerc
keep posting it's good for you to be involved, and do some research you will be amazed at what is out there for you.. we need to look after ourselves, our doctors are learning too slowly.

Sandra

[FONT="Comic Sans MS"][SIZE="4"]To be honest, I never recognized a spread until way after the fact. I tried to never dwell on the symptoms and just kept fooling myself that it was something else. My doctor didn't help either because he didn't believe it spread and according to him, he was suposed to "know everything there is to know about RSD". At least that's what he kept telling me.......He is NO LONGER my doctor.

When it spread to my mouth, I never thought about it being RSD. I've always had bad teeth. (justification?) Sitting here today, years later, all of my bottom teeth have just fallen out from RSD. My dentist feels it is due to the bad circulation caused by RSD.

[FONT="Comic Sans MS"]When it spread to my legs and one morning I just couldn't walk, I figured I must have slept in a weird position and it would work itself out. It's been 4 years now and I am still confined to a wheelchair. Guess it was a spread........lol

I believe our minds protect us from things we just can't handle. So in my mind, because I could never accept the fact that my RSD was spreading, there was a logical reason (in my mind) for everything. And, it had nothing to do with RSD.

I wish I could be more help but if I learned anything it is this:

LISTEN TO WHAT YOUR BODY IS TRYING TO TELL YOU! If you feel something is wrong, don't let anyone convince you otherwise. I should have never listened to other people. I should have been listening to my own body

No matter how trivial it may seem, get in to see your doctor if you even suspect a spread. Don't wait and give it a chance to dig in for the duration. I don't care if it is a tickle, a rash, a headache, sweating, nausea.....if it is not normal for YOU, pay close attention to it.

I don't mean to be paranoid about every little thing. But don't be oblivious like I was and end up in a wheelchair with legs that don't work, arms and hands that don't work, back that is messed up, full body neuropathy, and numerous other afflictions.

Take care of yourself; you know how you feel, what hurts, what doesn't feel right. Stand up for yourself because in the end, it will be you that suffers. Not "them".........................and you will be left with nothing but questions and a body that doesn't listen to you anymore!

From a friend,
thematrix777

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