Thanks for the heads up. It's fixed, for now.

And again, that's http://www.association-office.com/ab...dir/search.cfm

Mike

Thank you for taking the time to assist me. I will take some names and see if anyone knows of them. I don't care about a bed side manner. However, if they like many of the docs i'm running into doesn't know what rsd does to the body it will be a waste for both of us as an ire is abt. 2500. out of my pocket. I didn't even know there was this starting place to look for Doctors though. I can't really thank you enough and i will pass it on to the group.

Sorry for the delay in responding, I just hadn't been following the thread. I would be greatly surprised if any of the doctors who went through the rigorous certification procedures of the American Board of Pain Management - including an 8 hour written exam - was unfamiliar with what RSD does to the body.

But as an aside, I'm constantly surprised - and not always prepared - for some of the little wonders, "good" and "bad" that life has in store. A very wise 102 year old Zen Roshi here in LA takes the position that he is a travel agent, selling tickets to Heaven and Hell, and the trick is to be indifferent between the two!

So good luck. I'm curious as to any feedback you get; keep us posted.

Mike

---Loretta,
Thank you for your advice. I wanted to respond to you & don't know how other then this..... which is fine but i'm sorry if it's not the proper way. I do belong to an rsd group here in Scranton, Pa.. One of the problems is the doctor has to be on a state list to give an IRE (Impairment Rating Evaluation). Besides that it seems that the doctors are not aware of what rsd really does to you as I have been hearing horror stories from everyone from the group. I hadn't really until this time but believe an agenda was being played out. (that's for another day). I did hear that I am a day late and a dollar short as there was a very good doctor who cared abt the pt, knew what rsd did to the body & who could do it but has moved out of philly and AWAY from schwartzman. I have to wait till he gets set up to see if Cleveland Clinic in Ohio has the same rules for ire's that pa does and if i can use him. I have seen another neurosurgeon in philly, he also states to stay away from schwartzman and the low dose treatments.
I have just gotten a name with ,,,,,,,,,,,,,,,,,,,,,,,,THOMAS JEFFERSON HOSP. Robert L. Knobler .......... Has anyone heard of him or his work???

Hi Amy, "Cuffs"
Amy, please don't worry about the 'exact' proper etiquitte for the forum. We all started once here, like yourselfl. You are doing just fine. I still don't know how to ask a question. We are just happy you found us, and we are more than happy if something we say helps you deal with this incredible disorder.
When my Dr. told me he would be moving in the future, I called the Mayo Clinic, and asked if they had a Dr. treating RSD. I also call Barrow's Neurological Institute and asked about their staff and RSD. So that may be one idea for you. Also, does the City of Scranton have a list of Drs. acceptable for the WC situation.
Another idea possibly is physical therapy groups. I was misdiagnosed here in Arizona and eventually flew back to my homestate, Oregon to a sports injury orthopedic group and saw the hand specialist. He diagnosed me in 1 minute followed up by testing. Ordered a tens unit and got me into physical the next day. I cam back to Arizona and saw a neurologist and orthopedic dr. ,hand specialist, and he had a physical therapy attached to his office. They physical therapists are actually ones that are very familiar with RSD-much more than the average DR. I was thinking, have you thought about calling physical therapy groups in your area and ask if they were treating RSD patients and then ask who are the leading Drs. in the area?
Because of the delay of treatment--wrong diagnosis'--My hand is crippled and can't bend fingers completely, kinda like a claw I guess. So it's really important to get physical therapy as soon as possible. If fact, if you end up with permanent lack of range of motion because of city's delay of treatment, you have recourse. Timing of treatment is really important.
Where do you have RSD? Has it spread? Do you have any range of motion issues?
Really wish to the best. Take care, and remember you are NOT intruding in any way by asking questions. Everyone here is more than happy to try and help you if we can.
Remember, it takes a tribe to raise a child. None of us would do very well without each other and our friends and family. And sometimes, they distance themselves because of difficulty in understanding RSD or their issues around illness. whatever.
Take care, and let us know iwhen you find a Dr. and how you like them. loretta