I voted no. :-) I am not nor have I ever been hypermobile. I think some people spout off with a line like "most people with rsd are/have/etc" when they know nothing of the kind.

Hugs,

Karen

I put that I don't know....

I know pre-RSD I could lay my hand down flat against my arm... no pain.

Now... I have trouble just grasping things...


Abbie

hi Ali,
way back when I was told I had hypermobile syndrome. I used to be able to put my foot in back of my neck, and my thumbs in back of my hands. Like I said, back in the day.

With bi-lateral lower extremity CRPS-1, I can still "solve" an ancient Zen koan* and produce for anyone interested the sound of one hand clapping, by flapping my fingers of my right (dominant) hand against the palm, about 4 -5 times a second. One of my sons can do this too, in addition to dropping down effortlessly into a full lotus position, legs crossed, both soles up.

So, in keeping with the theme of a large scale study of saliva from 5,000+ CRPS patients that Childrens' Hospital LA is now wrapping up - supported in part with a grant from the RSDSA - an aspect of this may well be in the genes.

Mike

*Formally: a paradox that transcends the logical or conceptual, the solution of which requires a shift to another level of comprehension. The Shambala Dictionary of Buddhism and Zen (1991) pp. 117-118.

No this is not me. I am sorry though that you face this. I read that article but was wondering Ali does that not make you or others have to do even PT in a different fashion? As a kid/teen I was very active. I would get injuries to heal but when this happened well 2.5 years later still high pain.

Thank you all for your input. It's interesting that most of you aren't Hypermobile as I know on most other forums, everyone has been hypermobile lol - guess everyone is different though!!!

I'm not sure if people that are Hypermobile have to have different exerices in PT Daniella, i've never really thought about it - thanks for bringing it up!! I know my PT's have always said that they have to be more careful with what they do seeing as though I am Hypermobile and I was told by the PT's at Great Ormond Street Hospital in London that even if my RSD ever goes into remission, I will probably always have to have PT due to being Hypermobile as my joints are pretty weak.

Thanks again everyone. It's nice to see if others have the same issues as me also !

Again I am clueless especially on the PT and activity with rsd in general but just a thought that came to mind. Also how you have stated other areas hurting too. I am always looking for a connection with myself of all my different pain and conditions. You may have mentioned this before but do you know anyone else that is young and with rsd or similar in you area. Just thought it may be nice to have that connection. We have support groups in our area though they rarely go and I have not been. I am mixed on my feelings I guess. I am so thankful for everyone here though.

I don't like the whole grouping personality in conditions of any kind. The reason is for someone who does not fit the criteria it becomes confusing and often I think a different approach needs to be taken. I know I am not type A and even with my past anorexia I did not fit the typical. In therapy I was often confused and I felt professionals came in with a certain approach when it did not fit me.
Ali I am going to try to hook you up through facebook. I will tell you more through there too. Sending thoughts