Hi everyone,

I just wondered how many of you with RSD are also RSD?

I was diagnosed with Hypermobility Syndrome around the same time as I was diagnosed with RSD and was told by my PTs that people with RSD are often Hypermobile as well. Apparently when you are Hypermobile, your joints bend more than in a 'normal' person, thus making you more likely to develop a Chronic Pain Condition such as RSD.

I was just pretty interested to see if anyone else was Hypermobile and whether there could be a link between Hypermobility Syndrome (HMS) and RSD.

Thanks!

I read up on Hypermobile and that is sure not me. I am 57 but as definatly sure I wasn't even as a child.

I am sure I had CFS and Fibro as a child and in school I couldn't do a lot of the sports and activities that other kids do. If I did it was a joke. I barely can move my joints in a normal way. Years ago a Dr. in NM told me that the tendons that go down the back of my legs were too short, that could explain why I had problems in sports but I'm definatly not able to bend like hypermoble people do.

I have seen people who can do some of the things that hypermoble people do though.

Interesting that they say most people with RSD have this. It will be interesting to see how many if any do.

Ada

Thanks for your input, Ada!

What you described about not being able to do sports sounds a lot like I was. I can't do sports now because of my RSD but when I was in school, I could never do anything in gym other than swimming.

I could never figure out how to do any of the sports and really hated having to do sports every week as I used to feel really stupid when I couldn't do any of the things that the other kids could!

I was diagnosed a few months ago with Dyspraxia which is a co-ordination problem and my PT's and doctor believe that that is probably the reason why I had so many problems in gym. No one ever picked up on it before I was diagnosed with RSD but I definitaley always had problems with it. In PT, I am always having to get the PTs to show me how to do anything as I can never figure out what I have to do which is really annoying!!!

Sorry you had to deal with that also as I know how stressful it is!

Here is an educational link for you...

http://www.chiroweb.com/mpacms/dc/article.php?id=31763

The symptoms sound like what I have but I sure don't meet the criteria.

Thanks for that. Very informative.

Ali, you sound just like me dear. You should have seen me trying to run the 60 yard dash as a child. I probably came in last walking and then the 500 yard dash, I can remember finishing that in practically a crawl. Funny what we can remember from our childhood.

I know nothing I had was delt with as a child. Back then people didn't go to Drs. much, they used home remedies. Dad did try me on one a day vitamins but I couldn't even take them, they made me sick.

As kids, I don't think we think anythings wrong either even though we know we aren't like other kids.

Ada

I voted no. :-) I am not nor have I ever been hypermobile. I think some people spout off with a line like "most people with rsd are/have/etc" when they know nothing of the kind.

Hugs,

Karen

I put that I don't know....

I know pre-RSD I could lay my hand down flat against my arm... no pain.

Now... I have trouble just grasping things...


Abbie

hi Ali,
way back when I was told I had hypermobile syndrome. I used to be able to put my foot in back of my neck, and my thumbs in back of my hands. Like I said, back in the day.

With bi-lateral lower extremity CRPS-1, I can still "solve" an ancient Zen koan* and produce for anyone interested the sound of one hand clapping, by flapping my fingers of my right (dominant) hand against the palm, about 4 -5 times a second. One of my sons can do this too, in addition to dropping down effortlessly into a full lotus position, legs crossed, both soles up.

So, in keeping with the theme of a large scale study of saliva from 5,000+ CRPS patients that Childrens' Hospital LA is now wrapping up - supported in part with a grant from the RSDSA - an aspect of this may well be in the genes.

Mike

*Formally: a paradox that transcends the logical or conceptual, the solution of which requires a shift to another level of comprehension. The Shambala Dictionary of Buddhism and Zen (1991) pp. 117-118.

No this is not me. I am sorry though that you face this. I read that article but was wondering Ali does that not make you or others have to do even PT in a different fashion? As a kid/teen I was very active. I would get injuries to heal but when this happened well 2.5 years later still high pain.