Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-24-2009, 12:35 AM #21
bobber bobber is offline
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hey smoke
even the prednisone directings said it can make you pschocic,,,on my loading stage ,11 pill in 2 days,,i layed in bed trying not to carry out the thoughts that were coming to mind,,a nurse said its worse on men due to the testosterone,,,im not a violent man,,boy i wouldve been then tho..glad i wasnt out getting gas some where and had someone get into oyur face at a gasstation,,,boy ,,youd read about me in the news papers,,,,,,once my dose came down,,i wasnt bad ,,but i was still short with people and easily annoyed,,,well im back to my old self,,,ive been off them for 4 days,,,,hey ...any way ,they worked great,,my legs look good and pain levels are down,but those stinking red dots are back,,, next time i run a cycle of prednisone,,im gonna chain myself out in the woods to a tree like a werwolf,,,,,,,,,,shame we gotta live this way,,,,,,,,,,,,,,,,,,,,are you guys sure you dont just wanna whack me with a 9 iron and put me out my misery,,,,,bobber...
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Old 06-24-2009, 07:39 AM #22
bassman bassman is offline
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Quote:
Originally Posted by Sandel View Post
We should always watch for is shingle as it can run hand in hand with RSD aparently, so it is always a good idea for us to get any painful lesions (dots, bumps, rashes, etc) checked out by our doctor.

I tend to think that the red dots that look like blood blisters are to do with the inflamation side of RSD, and the other rashy ones are to do with flare ups.
Thank you, Sandra. Sometimes we with this condition tend to chalk up all new symptoms to "just another oddball side-effect." We should always have a qualified physician look at (or listen to) anything new that happens to our bodies.

Self-diagnosis can be good, but also dangerous without follow-up. We should always pay attention --- who knows our body better than we do? A great example is a self-administered breast exam to discover a lump. But after we see something new, get in to ask a doctor. It may be something totally not related to RSD/CRPS and totally treatable.

After the doctors shrug their shoulders and (once again) say “I don’t know, I’ve never seen that before…” is when we should look for more suggestions here.


Mike
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Old 06-24-2009, 12:12 PM #23
Smoke_666 Smoke_666 is offline
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Default Chained to a tree? lol

Yeah, I had read that too, but I think I sorta thought/read that it was more common in older folks...maybe not, read so many things, stuff gets mangled. Either way, I spent years getting control of my anger, dunno why, but I have one wicked temper. Genetic, I think, my whole family is like that. Kinda funny watching our 14 month old when he throws a fit. I guess that's mean. Anyway, I'm really sorry to hear you had the same problem, it worked great, cut the swelling, pain was down, etc, but...I can be a very dangerous man when I'm NOT nuts, ya know? Scared me when I was looking to kill someone who I was friends with, for the next few days, as it wore out of me, I took back roads, avoided some people I didn't care for well, stayed home mostly...for fear I'll end up using the insanity defense, I don't think I'll take it again. It really manifested in full blown psychosis in me, I heard voices and everything. I even tried a quarter of a pill per day, and it still made me nutso. I am totally not prejudiced, my friend has an awesome tan, (he's a black fella) but I kept hearing ****** over and over and over and over. Made me question myself, my sanity, and everything else. It was horrible. I told him later about the wanting to kill him, and he says 'well, I saw the look in your eyes, and never turned my back on you, knew something was wrong'. Smart man. As regards the nine iron, damn, you know how bad a way to go that would be? I have thought about my end, ya know, years from now, when I am too old to move much, when the pain will probably be out of control. Blunt force trauma to the skull never ever came into my mind as an option. Gotta get yerself out of that self destructive mindset, not good for you, or our condition. God Bless, Later, Smoke

Last edited by Jomar; 06-24-2009 at 01:12 PM. Reason: per guidelines
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Old 06-24-2009, 03:12 PM #24
bobber bobber is offline
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hey smoke,
thanks for the concern,,,but you could swing by and pick up pete{aint so bad} and come over to snuff me out taking turns with the 9 iron,,,tell pete to wear his red dress and you wear mickymouse ears,,that way when the cops come,,they will let you guys go on a insanity snap. LOL.. im good now,,,but the prednisone help out with the red dots,,,they dissapeared. and the redness in my legs went away,,but it made me unstable,,,i didnt hear voices, but uncontrolled thoughts ran thru my mind,,,wow,,,ive heard of horra stories about steroids but i thought those guys were wacked anyway and used the meds as a crutch to get out from what they did wrong,,, i was close to losing it for about 2 days when i was heavy dosesing it like the dr told me,,,,as for you guystaking me out with the 9 iron,, at least you and pete have some fun whacking me [stress release like squeasing a stress balllol,,and id get a last minute laugh looking at you with the mickymouse ears and pete in that stupid dress,,,,,LOL,,,juust joking,, gotta take my mind off the pain,, i really hope and pray that God cures us all, i do feel better,,,,,,,,,bobber ps the dots came back when im off the prednisone
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Old 06-24-2009, 03:36 PM #25
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hey smokey
Something just came to mind,,,when i looked at the home page of this site and went thru the picture thread,,,,,"NINE IRON ANALAGIA" seems to be theme for us all,,,expecially for those who have it bad,,full body,,,in their organs ive talked to quite a few of these people on this site,,,my what im trying to say is,,,,RSD is like these peoples bodies are being beat on by a rsd nine iron on a daily bases,,,one whack at a time,,,then just when you feel healed up after a day or two,,,you get whacked again,,,if i eat the wrong food thats bad for me on the 4f diet,,,i get whacked again,,,whelps everywhere,,,,,,so i guess that rsd is like getting whacked on a daily base;s,,,,
" RSD " aka The "Nine Iron Disease"
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Old 06-25-2009, 09:58 AM #26
Smoke_666 Smoke_666 is offline
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Default The Nine Iron Disease

Quote:
Originally Posted by bobber View Post
hey smokey
Something just came to mind,,,when i looked at the home page of this site and went thru the picture thread,,,,,"NINE IRON ANALAGIA" seems to be theme for us all,,,expecially for those who have it bad,,full body,,,in their organs ive talked to quite a few of these people on this site,,,my what im trying to say is,,,,RSD is like these peoples bodies are being beat on by a rsd nine iron on a daily bases,,,one whack at a time,,,then just when you feel healed up after a day or two,,,you get whacked again,,,if i eat the wrong food thats bad for me on the 4f diet,,,i get whacked again,,,whelps everywhere,,,,,,so i guess that rsd is like getting whacked on a daily base;s,,,,
" RSD " aka The "Nine Iron Disease"
I think that is an excellent analogy. It feels as if that's what is happening to my knee, every couple of days I get a new shot to the leg. RSD=NID I think Pete may have found the new name he was looking for.
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