Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-24-2009, 04:54 PM #1
loretta loretta is offline
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lHi Andrea,
I'm sorry you are going to have to go thru another procedure. It's good you are starting to research your options now, having time on your side. It would be wonderful if you can have ketamine, since you have already experienced success with it. Just one suggestion, could you call your anesthesiologist and ask for earlier appointment, cancellation? That way you would have more time in case he doesn't or isn't willing to use ketamine in his coctail. There is a good website by Dr. Hooshmand in Florida that is now retired. www.rsdrx.com Another Dr. took over his practice I believe. I'm going to research that site for pre-surgery drugs. The RSDSA organization takes phone calls. I went to their annual meeting here in Scottsdale, AZ 135 attended the patients day and The next day was for Drs. But if you look up RSDSA, they have a phone number where they take calls. If I find something, I'll PM you. I just remembered, someone on this forum
had their Dr.. call Dr. Schwartzman in Philly and he was more than happy to share what they use before surgery. Hope the best for you. Let's keep in touch, so we can know
you get the information you need before surgery. Take care, loretta
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Old 06-24-2009, 05:45 PM #2
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loretta
talk with your anathesa guy and dr about a continous block after surgery. im due for surgery in 4 weeks to for a THR revison ,ive got to talk to my surgeon in about it too,
Remember that God is with you and our prayers are going up with you too. pm me when you want to and keep us posted
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Old 06-24-2009, 06:06 PM #3
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Andrea, I will keep you in my thoughts and meditation prayers. I feel so bad for you having to endure another procedure. I am here for you
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 06-24-2009, 06:38 PM #4
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thanks you guys for ur support and suggestions. i don't think i can change my appt with anethesia tho, since they're kinda rushing the date for surgery so i can be done with recovery by the time school starts (i'll be in the hospital for a week then recovery time is 4-6 weeks) at the end of august. so i'm cutting it close!

i do know my surgeon is going to talk to the pain management team and see what they say as well- good thing about being at stanford, having all top departments in every field.

what's a continuous block?
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Old 06-25-2009, 12:08 PM #5
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Default Hi Andrea,

I'm sorry to hear you are going through this. It sounds like you have been through too much already.

As far as the Anesteologist, he comes out to talk to you before you go into surgery. Tell him that you have RSD and if there is anything he can do to keep it from flaring or spreading. They haven't failed me yet with any of my surgeries.

Good luck on the surgery and let us know how you do.

Ada
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Old 06-25-2009, 04:05 PM #6
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Hi bobber,
Sorry you have to have surgery also. What is THR revision? Hope all goes well for you too. Take care, loretta
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Old 06-30-2009, 09:17 AM #7
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So sorry you have to go through this. I wish you the very best. I have read a lot of places that research has shown that high doses of vitamin c following an injury can prevent RSD. I don't know if it would help if you already have it, but it probably couldn't hurt. Hope all goes well. good luck.
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Old 06-30-2009, 12:45 PM #8
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I am sorry you have to go through more. I hope you feel better soon and have healthier/happier times. I don't have much input other then to state your fears and concerns to the doctors who will be doing it and also maybe they could speak to your pain doc or who your major rsd doctor treating you is. Many thoughts
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