Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-18-2006, 04:41 PM #11
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Default i hate the ice.......

i can not tolerate the ice....but frank loves it...he keeps it on for a bit, then takes it off, but it gives his shoulder so much relief..............????/ go figure...
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Old 12-18-2006, 08:29 PM #12
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Default Ice=ouch!!!!

I Was Ising Ice And The Pain Was Intense..dr Informed Me That Ice Or Cold Could Furthur Any Nerve Damage..so Now No Ice And No Heat...heat Makes The Blood Flow But I Don't Have The Strength In My Arm To Pump The Blood Back Up So My Hand And Arm Swell And Pain Worsens...damned If I Do Damned If I Don't .....still I Keep Trying???? Moonstar
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Old 12-18-2006, 09:02 PM #13
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Quote:
Originally Posted by emilys gramma
i can not tolerate the ice....but frank loves it...he keeps it on for a bit, then takes it off, but it gives his shoulder so much relief..............????/ go figure...
Hmm... I thought it was relief too, but then I read that it could give/ further nerve damage.


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I Was Ising Ice And The Pain Was Intense..dr Informed Me That Ice Or Cold Could Furthur Any Nerve Damage..so Now No Ice And No Heat...heat Makes The Blood Flow But I Don't Have The Strength In My Arm To Pump The Blood Back Up So My Hand And Arm Swell And Pain Worsens...damned If I Do Damned If I Don't .....still I Keep Trying???? Moonstar

Right- that's what I have learned- ice will further nerve damage.


Heat? Well, that hurts, but I am now trying that at PT. We'll see how it goes. I think the weight of the heat pack on my shoulders is harder than the heat itself sometimes.


Moonstar, is your RSD is your arm? My RSD is in my arms and shoulders. I have a "textbook" case (as my Dr told me)... I have nearly every symptom- color change, sweating, sensitivity to touch, and the severe shooting burning pain...
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Old 12-18-2006, 09:12 PM #14
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Hi Vanessa...yes My Rsd Is In My Left Arm And Hand..my Right Side Is Getting Worse Due To Over-use. Not Sure If This Is Also What Set Off My Fibromyalgia From My Neck All Down The Whole Left Side Of My Back And Leg Also...and Now Vertigo...they Are Keeping Me Out Of Work For A Month Now....this Will Be Great For My Depression...but What Else Can I Do?? Pt Didn't Help Much.. I Learned The Exercises And Stretch My Body All The Time But Can't Afford To Go To Pt,drs Visits And Therapy Plus All The Medication..it Is Costing Me More Than My Mortgage Payment Of 15,000 A Month...ouch On All Points...
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Old 12-20-2006, 01:45 AM #15
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Never once went near ice. It never entered my head to try ice. Then I learn to not go near it from here & research. But I have used cool wash cloths when the bright redglow was & still is at times on. It did help but I did have to cool the wash cloth down constantly cause my feet were so hot the wash cloth got HOT real quick. Especially in the summer when it is hot my feet go bright redglow colors & burns. Lately I have been having the feeling of freezer burn. Or else my feet are warm to hot, but feel as if they are really really cold. SUCKS! But also now with winter on, if the do get cold they are difficult to warm up too. Can't win for loose this time of year.

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Old 12-20-2006, 01:07 PM #16
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Hi Moonstar - I'd love to be able to read you, but this All Cap Thing is nearly impossible, makes the words jump, jump, jumpedy jump....if it's a problem, just small would be good...please?

Debby - freezerburn, yes, how well described, that's exactly what I get on the back of my hand and under my wrist to half way up my arm. So absolutely exactly.

all the best.

Last edited by artist; 12-20-2006 at 01:54 PM. Reason: typos..
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Old 12-20-2006, 06:35 PM #17
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Shocked sorry artist

i don't re-read what i write but now that you pointed it out..ouch!!!! hurts my eyes too.....thanks for letting me know.....
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Old 12-20-2006, 08:05 PM #18
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thanks, moon star, all is revealed..
atb!
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Old 12-22-2006, 08:06 AM #19
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Quote:
Originally Posted by Debby View Post
Never once went near ice. It never entered my head to try ice. Then I learn to not go near it from here & research. But I have used cool wash cloths when the bright redglow was & still is at times on. It did help but I did have to cool the wash cloth down constantly cause my feet were so hot the wash cloth got HOT real quick. Especially in the summer when it is hot my feet go bright redglow colors & burns. Lately I have been having the feeling of freezer burn. Or else my feet are warm to hot, but feel as if they are really really cold. SUCKS! But also now with winter on, if the do get cold they are difficult to warm up too. Can't win for loose this time of year.

DebbyV
I know exactly what you mean by that freezer burn feeling. I always told people that I felt frostbitten or something because internally I feel SO hot, but yet on the outside I am COLD.
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Old 12-23-2006, 01:59 PM #20
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Just wanted to thank everyone for the responses. Sorry I didn't sooner... this past week has been really bad pain wise and I just couldn't.

Currently I have stopped using the ice and I am just using minimal (20 mins. per day) heat and cool water at PT.
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