 |
|
| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
| Reply |
|
|
Thread Tools | Display Modes |
06-28-2009, 07:21 PM
|
#1 | ||
|
|||
|
New Member
|
Make your voice heard. Email Oprah on 7/8/09. Never before has there been such a large effort of people banning togther for RSD Awareness. We have people joining this mission not only from the East and West Coasts of American but also, Canada and the UK! This is a group effort. Your extra voice could be the one to make us loud enough to be heard "A Plea to Oprah for RSD"
|
||
|
 Reply With Quote
|
|
06-28-2009, 09:17 PM
|
#2 | |||
|
||||
|
Member
|
I don't mean to try and put down the effort, but there HAS been an effort made toward Oprah. In six years I've seen this happen at least 5 times. I don't mean to pessimistic either, but face it, in all these years no one has succeded in getting her to do a show on crps and probably won't. She's not interested in "people like us" because we don't have a happy ending, and we're not going to be miraculously "cured."
I once thought of all people Montel would do one on crps because he lives with MS. Did he? Nope, not even an acknowledment to anyone about it. "Mass mailing" him happened about the same number of times in the past six years as with her. Who ever does it, I'll be cheering ya on from the sidelines and hope maybe this time it'll work. Hugs, Karen
__________________
Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
|||
|
|
Reply With Quote
|
|
06-29-2009, 03:42 PM
|
#3 | |||
|
||||
|
Elder
|
May have a better chance of our voices being heard in mass if emails and/or letters were sent to "The Doctors"
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Dew58 (07-01-2009), GalenaFaolan (06-29-2009) |
|
06-29-2009, 06:15 PM
|
#4 | ||
|
|||
|
Magnate
|
Also if there is a show on this it needs to show the reality of what many of us face. I mean the doctor issues,the different failed med/treatments till one works,etc. Not a went to the doc tried neurotin and one is fine. That is great for the people that are lucky like that but when things just seem simple to fix it does not make it known how hard this is to fight physically and mentally. I agree too that many of like Dr Oz on Oprah there is great success from what ever problem that they suffered. It would be nice to get the word out especially to the medical areas. I hate it when I go to a non rsd doc apt for something and they are like what is RSD?
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Dew58 (07-01-2009) |
|
06-29-2009, 08:23 PM
|
#5 | ||
|
|||
|
Senior Member
|
Quote:
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Dew58 (07-01-2009) |
|
06-30-2009, 06:32 AM
|
#6 | ||
|
|||
|
New Member
|
It's a good idea. What's Oprahs address? Do you have a specific topic, a main theme, that you would like every one to stick to? You're always going to get negative replies and they are always the quickest and largest segment to reply. Doesn't mean they represent the attitude of most people. They just like to let you know their feelings more than those with positive attitudes. No matter how often it seems our efforts are wasted we just have to continue. Like we used to say in basketball "Never up. Never in."
There was piece done on The CBS Evening News with Katie Couric go to ** We have to Keep On Keeping On! |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Dew58 (07-01-2009) |
|
06-30-2009, 07:50 AM
|
#7 | |||
|
||||
|
Magnate
|
I wrote to Oprah about 3 years ago about this and actually got a letter back from her company. They said that she was no longer doing these types of shows. She her show from Chicago to California and now she obnobs with the movie stars and a lot of the shows are about movie stars anymore.
It might work if enough write to her but I don't think she wants the negative outcomes on there. Ada |
|||
|
|
Reply With Quote
|
|
06-30-2009, 08:41 AM
|
#8 | |||
|
||||
|
Elder
|
Harpo Studios where Oprah Show is filmed... is in Chicago.... A friend of mine just received her tickets for a September filming.
Oprah Winfrey Harpo Studios, Inc. 1058 West Washington Blvd. Chicago, IL 60607 Harpo Films Los Angeles, CA Oprah Winfrey Network (OWN) Los Angeles, CA Dr. OZ Show New York, NY
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
|
|
Reply With Quote
|
|
06-30-2009, 08:46 AM
|
#9 | |||
|
||||
|
Elder
|
The Doctors
5555 Melrose Ave. Mae West Building, Second floor Los Angeles, CA 90038 Dr. Phil Show 5482 Wilshire Boulevard #1902 Los Angeles, CA 90036
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
|
|
Reply With Quote
|
|
07-01-2009, 08:57 AM
|
#10 | |||
|
||||
|
Member
|
What could be hurt by trying to spread the Words of RSD/CRPS...count me in ! Maybe someone will pay attention if we all write/email the shows.
__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
|||
|
|
Reply With Quote
|
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| A PD awareness badge for online awareness... | Parkinson's Disease | |||
| Oprah and Montel | Thoracic Outlet Syndrome | |||
| Oprah and Dystonia. | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
| Tomorrow 3/31/09 on Oprah | Parkinson's Disease | |||
| OT: Secret on oprah... | Bipolar Disorder | |||
Mass Email to Oprah for RSD Awareness
Linear Mode
