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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Heading to the RSD Walk in Manhatten

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Old 06-29-2009, 06:13 PM #1
debbiehub debbiehub is offline
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Default It went well
The walk was very nice...a little disappointing that Jim Broach couldn't make it. Met some nice people. A man was filming some RSDers talking about their disease..He makes documentary's and is hoping to air this on Discovery Health!

I am guessing there were about 200 of us there (just a guess)- There should be some pixs coming to the RSDSA website soon
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Old 06-30-2009, 11:03 AM #2
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I'm glad it went well. Looking forward to the pictures! Hope the documentary makes it to DH soon and that it'll help spread the word about RSD!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-01-2009, 08:53 AM #3
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I am glad the walk went well. Awareness is the key for RSD/CRPS to be recognized as a real disease. Thank You for walking
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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