Welcome to the forum.

I think any of us would like to know how you got to where you are. Any good info is appreciated to help get others to where you are today.

I am pretty much in remission today from the RSD but it sure hasn't been an easy road. Mine started around 2000 when I had TOS surgery. I actually think though I had it in 98 from falls I had but the surgery just multiplied it.

I went into councelling and was encouraged to walk and pray. My Dr. told me to keep saying to myself as I walked, " God give me strength" and I walked and cried from the pain for years and got good medical care. I can't say these last 10 years have been the hardest because I became sick in 87 but after RSD it seemed my world came to an end.

I have gone back to walking. I have found me some good shoes. I bought some curve sandels from Avon that are fantastic and in the winter I wear New Balance. I still walk and cry at times but I think in the end it's worth it. I believe walking is the lesser of the 2 evils. Walking or strenous PT.

It would be great to hear your story of how you got to where you are and in just 9 months. Wow.

Ada

ADA,
This gal was just a visitor. Who knows when or if she/he will be back to tell us their story.

It was sorta rude to say all that, but to NOT say how she was cured or what they did to become cured in my book. They have to know from all the negative they read on line about RSD how badly people anywhere would love to know how they were cured.

DebbyV

Sometimes people leave for emergencies or other issues. She may be back and she may not. At any rate, I answered her. At least she knows if she comes back that people are interested in what she has to say.

I hope you are doing better.

Ada

So sorry - didn't mean to be rude by not replying sooner. This is the first forum I've ever been on and I'm a bit new to it all. I went to the seaside for a few days to Dorset and then my parents have been visiting. I have also been finding it hard to summarise and put into words everything that has happened to me over the last year and a half. It is also hard because part of me just wants to forget about how traumatic it all was and just move on and live my life. I think that is maybe why there are not so many recovery stories around ( I could be wrong). However, I really do want to help if I can and so I am putting together a summary of everything I did to get better and everything I read that was useful (I tried a lot of things and a lot of them helped) and will post this as soon as I have finished it, on this site. I am then going to try writing a booklet with a bit more detail as I feel that this is needed. When I was recovering, I did not find a book written by someone who recovered completely or believed that you could, and believe me I could have done with that. That's why I'm going to try to write one. When I was first diagnosed I was terrified I would never recover and that I would never walk again. In my darkest hours I even told my boyfriend I would commit suicide if I could never walk again. As you know, constant pain can break the strongest of people. Going walking in the countyside was my life, my escape, my freedom. When I was diagnosed with RSD, I lost all that and a lot more.
I know I am extremely lucky to have recovered. Nothing I can say will fully convince you that you too can recover and I do not want to be patronising in any way, but I want to give you the most useful information I can, so please bear with me while I put it all together. In the meantime, please, please , please, get Dr Sarno's book - 'The Minbody Prescription' and give it a try. I'm aware not everyone can accept his theories, but please give it a go. It was recommended to me by my NHS GP, who told me a patient of hers with a Chronic Pain Syndrome similar to mine had tried it after years of pain and she was pain free after working with this book. The book was a part of my recovery too.

Love
Ness