Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-10-2009, 09:55 AM #11
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fmichael fmichael is offline
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fmichael fmichael is offline
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You got it. I would also suggest that you have some professional quality photographs taken of your legs ASAP and see if your pm doc. can hold off submitting the referral by a couple of days, so the pics can be in the package. (I know that in my case - a too many years ago - some shots of my almost flourescent red feet against a solid white background made a big difference at a crucial time.)

Mike
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"Thanks for this!" says:
loretta (07-11-2009), mrsD (07-11-2009)
Old 07-11-2009, 03:25 PM #12
bobber bobber is offline
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hey Loretta
im not on W/C..its a private insurance,,,,and it was the guy who reads the bone scan who forgot what the R stood for in rsd,,,,ive got hot spots everywhere in my heel{injury site] and thru my ankles ,,,and feet,,My hope is in the Almighty,,he see;s whats going on,,,I will lift up everyone on this site to him,,that you can believe ,,,,,,bobber......p.s my hip surgeon is aware of the rsd possiblity,,and i told him it would be wise to do a continous block and he agreed,,,we both yesterday agreed to give this another 7 weeks to see if the hip will heal,,,
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Old 07-16-2009, 11:21 PM #13
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Hi group
i just came back from the foot dr 2day,,its eveident he wants to write me off,,he says i dont have rsd,,,maybe M.S..i told him i had a cat scan and mri feb this year and it was ruled out,,he looked at my bonescan and allthough he see;s the hot spots,,he is clueless,,but he doesnt want to see me anymore,,although he said 4 months ago he would free up the nerve entrapment,,but he says i dont have that anymore,its healed he says,,,but i showed him and it looks terrible,,my legs are thin skined and red with mottling,,poor circulation and its mirroed to the other leg and now ive got burning in both arms and shoulders,,he says i have M.S and spinal radiculopathy,,,,i told him i had a mri and cat scan for ms 4 months ago,,he says he knows what rsd looks like but i donthave then first symptom,,i kept my composure and dignity and left,,,,,,,,,,,,,ive got a monday appt with pain med guy to read the bonescan and get his take,,i hope God heals me ,,my faith is in him,,pray group ,,pray,,may the Lord in whom we serve heal us,and may he forever be exhalted as God ,,,,,,,,,,,,,,,,,,,,,,,,,,,bobber
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