Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-09-2009, 02:11 AM #1
bobber bobber is offline
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the neuro is running blood tests to rule out any autoimmunes ,pray that they come back clean,i had a bone scan 2day,,,the tech showed me alot of hot spots in the injury site,,spreading into the foot some spreading to the other leg,,,mirroed,,my legs look like a rotesery chicken and the skin is thin,,my feet sting like they are sunburned and im not in the sun ,,im iside on crutches,,poor circulation,,,exspecially when my legs are in the dependent stage[standing up,,,,,,,,,,,,keep me in prayer,,,oh the dr and tech doesnt think its rsd,,the neuroligist at the imaging center didnt know what rsd stood for ,,but said i didnt have it,,,,,where is the nine iron when you need one,,,,,,,,,,,,,,pleased pray that the blood comes back clean,,,,,thanks group,,,,,,bobber

Last edited by bobber; 07-10-2009 at 12:17 AM.
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loretta (07-09-2009)
Old 07-09-2009, 09:49 AM #2
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Quote:
Originally Posted by bobber View Post
the neuro is running blood tests to rule out any autoimmunes ,pray that they come back clean,i had a bone scan 2day,,,the tech showed me alot of hot spots in the injury site,,spreading into the foot some spreading to the other leg,,,mirroed,,my legs look like arotesery chicken and the skin is thin,,my feet sting like they are sunburned and im not in the sun ,,im iside on crutches,,poor circulation,,,exspecially when my legs are in the dependent stage[standing up,,,,,,,,,,,,keep me in prayer,,,oh the dr and tech doesnt think its rsd,,the neuroligist at the imaging center didnt know what rsd stood for ,,but said i didnt have it,,,,,where is the nine iron when you need one,,,,,,,,,,,,,,pleased pray that the blood comes back clean,,,,,thanks group,,,,,,bobber
Bob -

Please. Get a copy of the radiologist's report of the bone scan to show to you PM. And if the jerk of a neurologist is the guy who's reading the films and writing the report, then you need to get copies of the images themselves.

I'm no doc, but that sounds like a classic positive bone scan report for RSD/CRPS. Sorry. So, I'm not sure that a clean result on the blood test for autoimmunes gets you out of the woods. Can't believe the neurologist said he didn't know what RSD was, but you didn't have it!

Mike
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Old 07-10-2009, 12:27 AM #3
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hey mike
im ahead of you on getting the report and i already havew the images,,i will have in hand the report but i insisted on haveing the images b4 i left the dr,,,the pain med dr yestaerday as well,doesnt think its rsd even tho i look terrible ,and as like you my feet [on the bottoms and back of the heel]are killing me when i lay down ,feels like ive been cane'd......i called the dr in U,N,M i need a referal which im working on,they say its hard to see him,,the lady at the desk there said he will read the referal,see what meds and injections have been done and its up to him if he wants to see you,,,,pray buddy pray,,,,bobber
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Old 07-10-2009, 09:55 AM #4
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You got it. I would also suggest that you have some professional quality photographs taken of your legs ASAP and see if your pm doc. can hold off submitting the referral by a couple of days, so the pics can be in the package. (I know that in my case - a too many years ago - some shots of my almost flourescent red feet against a solid white background made a big difference at a crucial time.)

Mike
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loretta (07-11-2009), mrsD (07-11-2009)
Old 07-11-2009, 03:25 PM #5
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hey Loretta
im not on W/C..its a private insurance,,,,and it was the guy who reads the bone scan who forgot what the R stood for in rsd,,,,ive got hot spots everywhere in my heel{injury site] and thru my ankles ,,,and feet,,My hope is in the Almighty,,he see;s whats going on,,,I will lift up everyone on this site to him,,that you can believe ,,,,,,bobber......p.s my hip surgeon is aware of the rsd possiblity,,and i told him it would be wise to do a continous block and he agreed,,,we both yesterday agreed to give this another 7 weeks to see if the hip will heal,,,
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Old 07-16-2009, 11:21 PM #6
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Hi group
i just came back from the foot dr 2day,,its eveident he wants to write me off,,he says i dont have rsd,,,maybe M.S..i told him i had a cat scan and mri feb this year and it was ruled out,,he looked at my bonescan and allthough he see;s the hot spots,,he is clueless,,but he doesnt want to see me anymore,,although he said 4 months ago he would free up the nerve entrapment,,but he says i dont have that anymore,its healed he says,,,but i showed him and it looks terrible,,my legs are thin skined and red with mottling,,poor circulation and its mirroed to the other leg and now ive got burning in both arms and shoulders,,he says i have M.S and spinal radiculopathy,,,,i told him i had a mri and cat scan for ms 4 months ago,,he says he knows what rsd looks like but i donthave then first symptom,,i kept my composure and dignity and left,,,,,,,,,,,,,ive got a monday appt with pain med guy to read the bonescan and get his take,,i hope God heals me ,,my faith is in him,,pray group ,,pray,,may the Lord in whom we serve heal us,and may he forever be exhalted as God ,,,,,,,,,,,,,,,,,,,,,,,,,,,bobber
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