Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-06-2009, 06:31 PM #1
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I have had full body RSD for 9 years. I have had two bone scans during that time and my RSD is not affecting my bones so the scan was clear both times.
Take care,
Sherrie
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ALASKA MIKE (07-07-2009)
Old 07-06-2009, 06:37 PM #2
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i had bone scan about 6mths into rsd and it was positive for already bone loss in my shoulders right wrist, and legs and spine. so i would say its a 50/50 chance of it coming back postive or neg.. that actually test that i had 11yrs ago to dx it was phentolmine challenge and thermography !! also vascular testing .. hope that this helps.

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 07-06-2009, 07:57 PM #3
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i was diagnosed like a month after my initial injury. nothing showed up on my bone scans or mri's or ct's or xrays tho... other than my original injury- hairline fracture to my radial. was pretty much process of eliminating everything else
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Old 07-06-2009, 08:19 PM #4
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Had my 1st scan at 5 months after onset and it only showed my broken kneecap which I didn't know I had. The 2nd scan was done exactly a year later and it came back negative for anything at all. I was glad to know my break had healed!

Hugs,

Karen
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Old 07-08-2009, 12:02 PM #5
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Mike,

Thanks so much for pointing us to that article!
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-17-2009, 12:02 AM #6
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My x-ray showed bone loss within 6 weeks of surgery (that was one key aspect of the diagnosis for me). I also had a bone scan that showed loss. Over time, the bones in my foot improved; I think part of it was a weight-bearing issue, along with the RSD.
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Old 07-23-2009, 07:09 PM #7
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Hi;;millproof
im glad you are getting more bone density from movement,,thats what im doing weight bearing is good for stimulating bone growth,oseoperosis and rsd bone loss too,,its painfull for me after the workout and i get falreups too,,but i think its worth more to move in my case and with all rsd patients,,its always good to hear someone one this site who is showing progress,,God bless you all,,,,,bobber
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