Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-12-2009, 09:14 AM #1
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Some people react to high folate amounts with emotional lability.

Deplin has a pretty high dose per tablet. 7.5mg.
Also high dose folate may severely mask low B12 levels.

I'd get a B12 serum level done...if it is below 500 I'd get B12 to go along with that folate. This is very important, because if you are low in B12 you can sustain neuro damage. Did your doctor test your B12 levels? Do you know what they were?
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Old 07-12-2009, 03:07 PM #2
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WOW.... thks 2 all of u! i luv having so many RSD "buds" who actually understand & can give great support & advice! i will ask about my B12 levels (since i'm taking Deplin). To GalenaFaolan: about 2 read ur article! To fmichael: thks 4 info & will ck out Shinzen Young!
To ali12: my, ur so young! i DO c a psychologist once/wk! thk goodness! and my worker's comp nurse said that she had never heard of RSD spreading from arms 2 legs!! ha (jus' visited my ft dr on friday.... may have RSD in ft now - from my left wrist, arm, shoulder) thks 2 all of u 4 support! as i said before, i fell at wk in 4/08 - was a school district's technology coordinator! broke left wrist in 2 plcs - that's why my typing lks like texting! i haven't wked since then - but being pd. very blessed in many ways! hugs 2 all!
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Old 07-12-2009, 04:28 PM #3
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Nancy: Sorry to hear that you are having such a hard time. I have been fighting this for 10months now and I understand. I spend several nights on the couch crying and praying trying to sort things out. The pain was a big driving factor, especially since I am allergic to most oral pain meds. I had emotional reactions to some meds; you might check the side effects. I didn't realize that that was one of the side effects until I asked my pharmacist. God is good and helps me to deal and I will pray that all the advice and venues you are seeking will be very helpful to you in your quest along with the rest of us. Take care. Suz

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Originally Posted by nancyinLA View Post
WOW.... thks 2 all of u! i luv having so many RSD "buds" who actually understand & can give great support & advice! i will ask about my B12 levels (since i'm taking Deplin). To GalenaFaolan: about 2 read ur article! To fmichael: thks 4 info & will ck out Shinzen Young!
To ali12: my, ur so young! i DO c a psychologist once/wk! thk goodness! and my worker's comp nurse said that she had never heard of RSD spreading from arms 2 legs!! ha (jus' visited my ft dr on friday.... may have RSD in ft now - from my left wrist, arm, shoulder) thks 2 all of u 4 support! as i said before, i fell at wk in 4/08 - was a school district's technology coordinator! broke left wrist in 2 plcs - that's why my typing lks like texting! i haven't wked since then - but being pd. very blessed in many ways! hugs 2 all!
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Old 07-16-2009, 02:14 AM #4
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Hi Nancy and Welcome,
Besides seeing my psychiatrist once a month, the last 5 years, I'm taking a lot of vitamins anti-oxidants etc. I've seen a female Dr. that does bio=identical hormones and does all the tests. I'm 61 I have full body 13 years. I have spells of crying still, it's rough to loose your health. I use meditation, prayer, reading, music, keeping in touch with friends, scented candles, hand and feet waxing, epson salt baths, essential oils, massage therapy, swimming keeps me mobile and feels good. visualization, bio-feedback,
Basically any kind of distraction, my soft furry cat, I'm grateful for being where I am, my health seems to be getting better, not worse. I have a brilliant Dr. I going to try hyper baric oxygen chamber in his new clinic.
Before you settle with WC you might talk to others that have gotten lifetime medical care, and put in certain treatments that are not normally covered by insurance, but work really well for RSD patients. Take care, loretta
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Old 07-19-2009, 03:07 PM #5
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I am really bad today. The bill collectors call incessantly from 8 am on. Each call reminds me of my RSD, and the resultant financial ruin. Sometimes I think it's a wonder I don't drink myself silly every day.
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Old 07-27-2009, 08:42 PM #6
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Quote:
Originally Posted by loretta View Post
Hi Nancy and Welcome,
Besides seeing my psychiatrist once a month, the last 5 years, I'm taking a lot of vitamins anti-oxidants etc. I've seen a female Dr. that does bio=identical hormones and does all the tests. I'm 61 I have full body 13 years. I have spells of crying still, it's rough to loose your health. I use meditation, prayer, reading, music, keeping in touch with friends, scented candles, hand and feet waxing, epson salt baths, essential oils, massage therapy, swimming keeps me mobile and feels good. visualization, bio-feedback,
Basically any kind of distraction, my soft furry cat, I'm grateful for being where I am, my health seems to be getting better, not worse. I have a brilliant Dr. I going to try hyper baric oxygen chamber in his new clinic.
Before you settle with WC you might talk to others that have gotten lifetime medical care, and put in certain treatments that are not normally covered by insurance, but work really well for RSD patients. Take care, loretta
how do i find out about my state offering lifetime medical care? thks!
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Old 07-28-2009, 12:04 PM #7
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I am not sure about this type of thing Nancy but I would think if you ask your doctor they may be able to give you direction. I would think every state is different as well. I have never heard of lifetime care. Loretta do you have this for rsd? Wait is this the name of the coverage or do you mean life time. Sorry clueless? Just thought with rsd there could be a time where you would be able to work etc.
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Old 07-29-2009, 01:53 AM #8
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Hi Nancy,
I am in California and I believe with a WC case you can have life-time medical care once the case settles. You might consider calling a WC attorney for a phone consultation..
But it is best to secure a WC attorney to work with you and to protect you...
I wish my accident had never happened, but since it did, I wish I didn't have to deal with Worker's Comp...I have to beg for authorizations...
Thus far, they have been somewhat reasonable....but it is a battle...

Take care,
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Old 07-26-2009, 10:01 PM #9
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Quote:
Originally Posted by mrsD View Post
Some people react to high folate amounts with emotional lability.

Deplin has a pretty high dose per tablet. 7.5mg.
Also high dose folate may severely mask low B12 levels.

I'd get a B12 serum level done...if it is below 500 I'd get B12 to go along with that folate. This is very important, because if you are low in B12 you can sustain neuro damage. Did your doctor test your B12 levels? Do you know what they were?
well, cannot take Deplin any longer - took it 12 days & i began having seizures..... interacts w/my seizure meds! so.... back 2 10mg Lexapro and was prescribed Ativan 4 "impending" seizures.....
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