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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-19-2009, 02:18 AM | #1 | ||
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07-19-2009, 04:29 PM | #2 | ||
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My face has been doing this for 20 yrs, mainly when i get hot. its weird because you oversweat on one side and hair is dry on the other. when i taught school i used me as a science lesson for right brain left brain. It's embarassing more than anything. if it gets too hot i ice
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07-19-2009, 09:28 PM | #3 | |||
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Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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"Thanks for this!" says: | loretta (07-19-2009), SunshineGirl (07-19-2009) |
07-20-2009, 10:01 AM | #4 | |||
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When I'm under severe stress, my neck and face will start to go totally red as well, I will get these awful red blotches. It's something that just happens and that I have no control over. And it's not as if it's a side-effect of meds, because I also had this when I wasn't yet diagnosed, when I wasn't on any pain meds yet.
This can happen during a car ride that takes too long, during a doctor's visit or check-up, when having tests done at the hospital, ... it's very unpredictable.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | AintSoBad (11-16-2009) |
07-20-2009, 07:19 PM | #5 | ||
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Yes it is unpredictably, and I notice I get it the last couple times when I am really tired and in alot of pain, Like we went on vacation and I had it happen both nights at dinner, like I turned an alarm clock on and it just started.
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07-20-2009, 10:49 PM | #6 | ||
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Whats also weird is one foot is hotter than the other,,my right foot[the worst of the two]gets colder than the other,,maybe from poor circulation that comes from vasomotor interuption from rsd ,but after activity[aqua jogging it turns red and gets hot,,stings and burns like a sunburn,,its not uncommon for one side to be a different temp on me,,CRPSBE is on the money with the stress,,that makes mine not only flare but spread,,,,I pray for a remission for this whole group,,i wish the gov would more activly look for a cure,,,,,,,,,,bobber,,,,,,,,,,,,
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"Thanks for this!" says: | AintSoBad (11-16-2009) |
07-21-2009, 01:00 AM | #7 | ||
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I get the blotchy skin too! I'm so glad I'm not the only one, although I'm sorry you have the same symptoms
It covers mainly my neck and upper body, but also goes on my face. It even happened when I was at the hospital about my heart problems last week and the Dr hadn't seen anything like it. They were giant red blotches and I felt so hot it was like I had my face in front of a heater. I don't have it constantly, but have had it happen quite often- first noticing it about 2 years ago. So this is an RSD problem? Can anyone explain it?
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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07-21-2009, 01:59 AM | #8 | ||
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What kinda of heart problems are u having? If u don't mind me asking. I didn't think I had any heart problems either but I had to get a ultrasound two weeks ago or so because my blood pressure was so high and I had been on blood pressure meds for a long time. It seemed like it just went sky high all at once.. So they took me off cymbalta and changed bp meds..
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07-23-2009, 12:37 PM | #9 | |||
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I have no idea why this happens and I am guessing it has something to do with the RSD and with stress. It always happens when I am under a lot of pressure, a lot of stress or when I am very nervous for some reason. I do know that I don't handle stress the way I used to. I was extremely pressure-resistant until RSD hit. I lived off of stress before!
Maybe it's due to the nervous system reacting the wrong way, maybe it's part of it? I do know that I don't have heart problems. I went to a cardiologist many years ago for a full check-up and he didn't find anything except that my heart reacted as if I were very out of shape; but no wonder - I could barely move due to the RSD. One test couldn't be completed, I remember, because I had to ride a bike for it and that was no longer possible by then.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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11-11-2009, 11:35 PM | #10 | |||
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I've always had blotchy skin too, had it my whole life not just since I was diagnosed with the RSD 7 years ago. When my doctor saw it on my stomach he thought I had a rash, perhaps a reaction to something and given my history of allergic reactions it alarmed him. Ultimately it calmed down on it's own and was nothing that could be explained. I have a friend with RSD, she occasionally experiences a drooping of her face muscles on the her right side. When she has her lidocaine infusion her face returns to normal. All the doctors had to gather around around her to watch the remarkable recovery as the lidocaine works it's magic on her. I wish I could explain the red blotchy rashes that come and go but I've never been given and explanation as to the cause either pre or post rsd. Does anyone else out there have any answers? MsL |
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