Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-21-2009, 01:00 AM #1
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I get the blotchy skin too! I'm so glad I'm not the only one, although I'm sorry you have the same symptoms

It covers mainly my neck and upper body, but also goes on my face. It even happened when I was at the hospital about my heart problems last week and the Dr hadn't seen anything like it. They were giant red blotches and I felt so hot it was like I had my face in front of a heater. I don't have it constantly, but have had it happen quite often- first noticing it about 2 years ago.

So this is an RSD problem? Can anyone explain it?
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Old 07-21-2009, 01:59 AM #2
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What kinda of heart problems are u having? If u don't mind me asking. I didn't think I had any heart problems either but I had to get a ultrasound two weeks ago or so because my blood pressure was so high and I had been on blood pressure meds for a long time. It seemed like it just went sky high all at once.. So they took me off cymbalta and changed bp meds..
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Old 07-23-2009, 12:37 PM #3
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I have no idea why this happens and I am guessing it has something to do with the RSD and with stress. It always happens when I am under a lot of pressure, a lot of stress or when I am very nervous for some reason. I do know that I don't handle stress the way I used to. I was extremely pressure-resistant until RSD hit. I lived off of stress before!

Maybe it's due to the nervous system reacting the wrong way, maybe it's part of it?

I do know that I don't have heart problems. I went to a cardiologist many years ago for a full check-up and he didn't find anything except that my heart reacted as if I were very out of shape; but no wonder - I could barely move due to the RSD. One test couldn't be completed, I remember, because I had to ride a bike for it and that was no longer possible by then.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-23-2009, 04:21 PM #4
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Originally Posted by CRPSbe View Post
I have no idea why this happens and I am guessing it has something to do with the RSD and with stress. It always happens when I am under a lot of pressure, a lot of stress or when I am very nervous for some reason. I do know that I don't handle stress the way I used to. I was extremely pressure-resistant until RSD hit. I lived off of stress before!

Maybe it's due to the nervous system reacting the wrong way, maybe it's part of it?

I do know that I don't have heart problems. I went to a cardiologist many years ago for a full check-up and he didn't find anything except that my heart reacted as if I were very out of shape; but no wonder - I could barely move due to the RSD. One test couldn't be completed, I remember, because I had to ride a bike for it and that was no longer possible by then.
Hate to be bearer bad news but I have it too and now its my whole face started same way it's RSD and as u probably know u have to stay calm to keep pain levels down and the weather plays a real part in it too Hope I help u Shey
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Old 07-23-2009, 04:22 PM #5
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Hate to be bearer bad news but I have it too and now its my whole face started same way it's RSD and as u probably know u have to stay calm to keep pain levels down and the weather plays a real part in it too Hope I help u Shey
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Old 11-11-2009, 11:35 PM #6
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Quote:
Originally Posted by Cake View Post
I get the blotchy skin too! I'm so glad I'm not the only one, although I'm sorry you have the same symptoms

It covers mainly my neck and upper body, but also goes on my face. It even happened when I was at the hospital about my heart problems last week and the Dr hadn't seen anything like it. They were giant red blotches and I felt so hot it was like I had my face in front of a heater. I don't have it constantly, but have had it happen quite often- first noticing it about 2 years ago.

So this is an RSD problem? Can anyone explain it?
Hi Kate,

I've always had blotchy skin too, had it my whole life not just since I was diagnosed with the RSD 7 years ago. When my doctor saw it on my stomach he thought I had a rash, perhaps a reaction to something and given my history of allergic reactions it alarmed him. Ultimately it calmed down on it's own and was nothing that could be explained.

I have a friend with RSD, she occasionally experiences a drooping of her face muscles on the her right side. When she has her lidocaine infusion her face returns to normal. All the doctors had to gather around around her to watch the remarkable recovery as the lidocaine works it's magic on her.

I wish I could explain the red blotchy rashes that come and go but I've never been given and explanation as to the cause either pre or post rsd.

Does anyone else out there have any answers?

MsL
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Old 11-12-2009, 09:43 AM #7
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For me, it's my legs and feet. One side is ice-cold and the other is burning up. I will use my left foot like a "heating pad" to warm up my right foot.

I can't imagine that happening in your face. That must be difficult to deal with. I hope you can figure out some type of relief, no matter how minor.

Mike
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Old 11-13-2009, 07:31 PM #8
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I have extremely blotchy skin - on my chest, back, upper right arm and shoulder, neck and face. It "flares" more often in the afternoon and evening.

Sandy
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