I have one side of my face that flushes and is hot hot hot and then the other side of my face is cold?? What is this now?? So weird??? Maybe somewhere in my system I have a blockage>>

I have rsd in the right side of my face and every once in awhile the right side only turns bright red and it looks like someone drew a line right down the middle. You can put your hand a distance away and feel the heat radiating off my skin and I feel pain and burning, most of it in my cheekbone, like it's really deep. The left side is just normal feeling. With rsd, because it messes with every single part of our systems it can show itself in some pretty funky ways.

Hugs,

Karen

I thought I was crazy or had heart blockage or something like that. Who dx'd you for that in your face?.. I live in Arkansas and still looking for a rsd specialist close by or closer than Minnesota. I didn't think anyone would answer my question. thanks alot for answering me.. :~) The line right down the middle is exactly the way my face felt.. One side was cool and the other side felt like I was running a fever.. It seems like I have really went down hill just in the last month or so.. Heart rate off the charts blood pressure going up and down and now they have me going to send a nephrologist(kidney specialist) What next??

I have only been dx'd since last sept.. Just wondering where your started at?? and how far along are u?? Thanks LIsa

My face has been doing this for 20 yrs, mainly when i get hot. its weird because you oversweat on one side and hair is dry on the other. when i taught school i used me as a science lesson for right brain left brain. It's embarassing more than anything. if it gets too hot i ice

I got rsd in Feb 2003, over 6 years ago now from a broken kneecap I got a work from my knee saying hello, the hard way, to a broken handle. Except I didn't know the knee was broken until I had my first bone scan 5 months after rsd started. lol It was left knee/lower leg/foot and it quickly spread and it was in all four limbs by month 11. It spread from there into my back and face the last few years so full body now. I have a bladder thing from time to time that is not any kind of uti. I know exactly what rsd feels like so I knew what it was and my pain doc agreed it couldn't be anything else.

Hugs,

Karen

When I'm under severe stress, my neck and face will start to go totally red as well, I will get these awful red blotches. It's something that just happens and that I have no control over. And it's not as if it's a side-effect of meds, because I also had this when I wasn't yet diagnosed, when I wasn't on any pain meds yet.

This can happen during a car ride that takes too long, during a doctor's visit or check-up, when having tests done at the hospital, ... it's very unpredictable.

Yes it is unpredictably, and I notice I get it the last couple times when I am really tired and in alot of pain, Like we went on vacation and I had it happen both nights at dinner, like I turned an alarm clock on and it just started.

My friend has RSD since 3/06 - first r knee - with SCS attempt with to both feet in OR (the pain was so bad they aborted the procedure).

Now looks like it has spread with a major flair in the face/neck/head/back.
This skin is bright red (some color changes around the eyes) hot (you can feel the heat coming off it) burning, itching and sweating.
3 ER trips now and tons of blood work - all normal. has sub grade fever of 97 to 97.4. He is in misary (can not stand anything to touch him) no sleep. Looks like he has major sunburn with skin peeling off.

Also, flair in left lower leg and foot - looks like the foot is being burned from the inside out to the point it has major blister that are now draining. Wound clinic said they had no idea and could not help.

Any suggestiong on how to deal with the upper body stuff. Now on 300 mg of Lyrica times a day.

Will see internal med tomorrow and the PM dr from Anchorge Alaska who comes here once a month (most times)/

I pray for all how have this horriable RSD.
Thank you

Hi SunshineGirl
Good question-RSD is an autonomic disorder. Which means involuntary organs affeced, circulation, temperature, heart, lungs. our blood pressure can be high and then LOW I'll drop 50 or more points both top and bottom numbers. I've even passed out when went too low. sympathetic nervous system may be 150/90 and then the parasympathetic nervous system may drop it 90/50 . RSD affects the immune system . My first system of RSD was frozen shoulder following surgery. PT told me after I got my range of motion back- it may go to other side After a year of remission -it went to the other side. Another remission. Original side- hand next frozen hand- year later moved to right hand. then down legs and feet- full body. Also is why we are burning hot sometimes, then ice cold.
Please stay with us-I learned so much from friends here- helps me cope.
Take care, loretta