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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-12-2009, 02:56 PM
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Hi All,
I arrived in AZ last Thursday. I started flaring Thursday morning,in the plane. I meditated myself into a non-stress zone, and before I knew it, I was here in AZ. I just have to remember to take my meds on time...and I will be ok. AZ time is 2 hrs behind OK time, and I am just now getting my barrings to keep a timed med schedule. I was awake from 6 AM Thursday til 3AM Saturday morning...then I collapsed ad slept like a baby, for 6 hrs. It is so hot here,OMG! Yesterday, I was in the pool for over 7 hrs..hidden under a huge palm tree leaf, like a perch, in a lake,lol! I had two swim sessions of about 3 1/2 hrs each...I love the pool. I slept 8 hrs after my swim day..that is a miracle for me!!! Being outside for that amount of time is more than I have accomplished in over a year.  Thursday night I constructed a blog for my sister, Wanda, concerning her journey through the pancreatic cancer surgery. It is a place for her family and friends, and others, to watch over her as she deals with this culprit. the blog site is : http://wandakazen.blogspot.com/ Check it out, let me know what you think. The surgery is early tomorrow morning,7/13/09; it is suppose to take 4-5 hrs, the surgery in itself...trying to get myself prepared for the day, in so many ways. Wanda is really amazing with her positive attitude and unyielding spirit. She wears me out just observing her. Wanda used the palms of my hands as a heating pad on her sore knees(arthritis)..and tummy. Wanda is blown away at the rate of heat that my body puts out..guess RSD is good for something  Miss you all, Dew
__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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| "Thanks for this!" says: | AintSoBad (07-12-2009), fmichael (07-12-2009), loretta (07-13-2009), mrsD (07-13-2009), Twinkletoes (07-12-2009) |
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07-12-2009, 10:10 PM
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Love the blog! I am a follower and have bookmarked it in my fav blog folder. :-D Thanks for making it and sharing the journey with us. I'll be keeping her in my thoughts as it goes along and you as well!
Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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07-12-2009, 10:22 PM
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In Remembrance
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Linda,
You and your sister Wanda, are Amazing! I want you to both know, that I'm here praying for you both! I'm glad you can be together during these trying times. Only Wanda can battle her Cancer. Only You, can battle your RSD. But, you can both support each other, and, WE can ALL help in that! Again my prayers of support, to both of you! Gorgeous Sister's and Families! Pete |
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07-12-2009, 10:29 PM
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hi dew
im sure the plane ride took the sap out of you too,,i like that you had a chance to do water exercises,,im looking forward to it myself when im able,,tell you sister that the group are sending prayers for her and you as well,,,,,,,,,,,bobber |
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07-12-2009, 11:02 PM
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Quote:
Talk about a symbiotic relationship! Looking at your post and blog, it sounds as though you two were made for each other. Would that all sibs had a bond even quarter that close. Many studies have shown that a loving and supportive environment is the most conducive, overall, to health and recovery. And your sister is clearly getting it in spades. Seriously. Good luck on the 'morrow. much love, Mike ps The blog mentions something about cage fighting. Is that the one where razor blades are strapped to the opponents ankles? 
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07-12-2009, 11:10 PM
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Very nice blog, Linda. You sister sounds amazing!
My MIL battled pancreatic cancer for most of a year. It is a horrible disease, as you know. I pray the surgery goes well and does what it needs to in order to help her win the battle! 
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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07-13-2009, 10:46 AM
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Hey Dew,
I so recognize the breakthrough pain, esp. whenever there's long distances to travel. It's great that you can enjoy yourself in the pool and both exercise as well as get shelter from the sun. You are spending a lot of time in that pool! I love that you were able to sleep for 8 hours!!!I just checked out the blog and it's lovely to read, very calming in such a stressful time. Bless you for having started it for your sister! I hope the surgery went well. Keep us posted! Enjoy the AZ weather, hope you can get some more sleep while you're there (such a lovely thing to hear that you slept well). 
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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07-13-2009, 08:51 PM
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Hi Dew,
I'm so glad you are here and safe. I thought the blog was wonderful. Now I just have to figure out how to write on it. My friends set up a google site for me-guess it's called home page. Anyway, the swimming is really good for us. It is too hot though. Sorry I missed your call today. I hope you get a change to call me and let me know how Wanda is from the surgery. My heart goes out to her Take care of yourself and hope to talk with you soon, Your buddy, loretta |
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07-14-2009, 01:55 AM
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I have updated the blog for 7/13/09, day of surgery..what a day!!!
http://wandakazen.blogspot.com/ You can make a comment and sign your name under your comment. Click on Anonymous, and submit the post. Seems to be the easiest way..I am so TIRED..but still AWAKE! My sister will love to read your comments..I feel so loved by each of you. Thanks so much, from the bottom of mt heart!
__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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07-14-2009, 08:33 AM
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Hi Dew
I am keeping you and your family in my thoughts and prayers. You are a terrifc person and a caring person. I pray your family will stay strong through all of this. Take care of yourself as well. God Bless you and your sister.. 
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Dew in AZ
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