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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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12-20-2006, 09:38 PM | #1 | |||
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No this is not a ghost from Christmas Past!!! Just me!! Finally able to get around a little. Thinking of you all and hoping everyone has a wonderful Holiday!. Things have been a little bumpy lately but yeh just can't keep me down. I miss ya all terribly. Janet I thank you so much for the email but cannot respond with it yet, it is acting funky. My ole computer is just about on its last leg. Oh well. Well I finally filed bankruptcy. Can you believe that in the Commonwealth of Massachusetts it cost 2,200.00 to file? I almost s**t!! and unfortunately you cannot do it here without a attorney. Talk about a double edged sword. You file because you have no money, but you can't file unless you have money. Sheeeesh!! My last Doc vist showed progression with the MS but I have decided to focus on the RSD for now as well as the neuropathy and not think about the MS. Call me in denial but I just do not have time for everything or I will explode.
It would only mean more drugs and I don't need more drugs. Hell, I probably own a pharmacuetical company by now. Who knows? I think the biggest thing for me these days is the tiredness and the loss of feeling in my hands and feet. Of course the pain is always there but the others are more serious to me. Once the circulation issues start I worry. The skin gets cold and darkens. So I have to force myself through the pain to use them to keep the blood flowing. I'm a mess. Artist Your little baby is so sweet. I love the pic. Well I will go for now and I hope to be able to come back on soon and chat more. Sooo good to see Vicc back with us. I talked to my little sister Debbi3674 from Cali tonight. She checks in on me alot. Who would ever think such a friendship could ever be forged here on the forums. I love her dearly. She keeps me posted and I told her to send my love but I am able to send it myself. Please everyone chin up wihen things get you down and take life one day at a time. With so much love to you all!!!! Mark xoxoxoxoxox
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. . "MY MOMMA SAID THERE'D BE DAYS LIKE THIS!!! . |
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12-20-2006, 11:48 PM | #2 | ||
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Yappiest Elder Member
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we sure have missed you!!!!!!!!!!
take care mark. wishing you pain free days and nights. ((((hugs))))
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12-21-2006, 12:02 AM | #3 | ||
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Hi Mark!!
Just a quickie, I'm SO pleased to see your post - had a feeling things were a bit difficult; but your "survival plan" sounds very sensible...know what you mean about information overload, a body can only deal with just so much and no more...as with everything, one step at a time. I'll get back to you later, they're switching off the electricity in my area for 5 hours...so I'll be offline...love ya! So glad you've got Debbie to look after you, isn't she a sweetie!! later. xx all the best. |
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12-21-2006, 09:26 AM | #4 | |||
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Junior Member
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Hi Mark!! Glad you could bring some love to us! It made my day talking to you. You are a very wise and loving "brother"....a brother I never had. Mine is an *****. So I am truly blessed that you have come into mylife. I love you very much and I just know you are gonna make it. Keep those positive thoughts...they are contagious and Lord knows I need to be infected with some of your optimism. Love you so much Mark
Love from Deb |
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12-21-2006, 05:16 PM | #5 | |||
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Hey Mark
Sending big hugs - leave the info overload - you can only cope with so much at any one time... Love ya and have an awesome or at least peaceful and as pain free as possible Xmas Rosiexxxxxxx
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It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone |
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12-21-2006, 07:39 PM | #6 | ||
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Hi Mark
It's good to hear from you again. I know you're having a rough time but I hope you still have a great Christmas and that 2007 gives you some symptom relief! x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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12-22-2006, 10:42 AM | #7 | ||
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Howdy Bud,
This might sound a bit off the beaten path. But I have been reading a little about MS. I know my brain is involved. I also have had subclavicle compression which I had to have surgery 7 months ago. I had a test to rule out Lymes. Of course I was given a Elisa test that from what I am reading is not accurate. Mine came out INC. But here is a little reading The condition is often misdiagnosed to the symptoms mimicking other conditions such as multiple sclerosis, amyotrophic lateral sclerosis, seizure and arthritis. Article http://www.wrongdiagnosis.com/news/m...cal_damage.htm Big Huge Hugs, Roz |
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