Hi Jennelle,
I don't know if you have access to the interenet while in the pain clinic, but please know we are all thinking of you. Being scared is natural when we are facing something new. Remember you made it thru the state boards for nursing! And you will be supported at the clinic. One of my best friends is a A & D counselor. She and her husband were just here for 10 days. We used to live in Arizona and used to live in Oregon. They come every other year. We enjoy the pool together and they just love to lay around, read, swim, and visit. She is one of the people on my Drs. list that I've given permission for him to speak to. I'm sure you will find people like her that you will be so comfortable around.
Please let us know when you come home from the clinic. Know we all care about you. Your friend, loretta

janelle

i hope that you can get some good out of this but like others have said it might be a ploy by who is limiting your treatment as this will "make you all better".i will keep you in my thoughts and hope that maybe this will work for you.. your so sweet hang in there

carrie

Hi,

This group is very caring, loving, understanding, and helpful. But this group does not need comment like yours. We all deal with the pain and lack of sleep every day of our lives. I was in detox Feb. of 2008 and was given Suboxone. It didn't do a thing for me. I didn't think it to be a very good drug. And what we have to rember what works for one person may not work for another. And also there are nicer ways of sharing information with each other.

Kate


(Quote)
Wink suboxone is great no more RSd pain success
If anyone has RSD and wants the pain to stop and their life back, you need to find a drug addict doctor in your area who can write a script for Suboxone.
I have RSD full body stage 3. I ahve been taking Suboxone for almost 1 year and I love it. It blocks all your pain and you can live a normal life and stay out of the wheelchair. So what is everyone scared about?? loosing your pain?? Having a normal life?? Kicking the narcs and opiates aside? Quite making your doctor rich and do something to help yourself! or if you all like being in pain and giving up on life, I hope you all enjoy having a pity party of poor me. Suboxone works and it's way better than living on drugs and in pain till the day you die!
pkwildfire(Quote

Hi Jennelle,



I will not dignify the spew quoted by pink something or other...not worth my time.

love you,

Hi Jennelle,

I'm not sure if you have internet access on the rehabilitation program. I know when I went to the program at Great Ormond Street Childrens Hospital in London, we took the laptop with us but I wasn't able to use it too much as I was generally too tired. My mum did most of the updates for me.

I just wanted to write and say that I hope everything is going well for you and that you aren't in too much pain and are finding the program helpful!! The program I went on was h*ll but it did help a little ... without it, I would probably still be in a wheelchair now instead of being able to walk short distances. The second program I went on didn't help me at all but i'm kinda glad I did it as it gave me some good coping techniques. My PTs want me to return back there now but i'm not sure if I want to go back seeing as though the second program didn't help. My PTs at my local childrens hospital don't think it would help either as I have had LOTS of PT during the 2 years that I have had RSD and it hasn't helped that much so they think we need to explore some more invasive approaches.

I hope you didn't have too many problems getting off the pain meds. It was hard for me as my dr took me off them too soon so I had the withdrawal symptoms. Whilst I was on the program, the PTs explained to me that they wanted me to come off the meds as it has been proven that people can cope with the programs a little better if they aren't as fatigued from the meds ... not because the pain is psychological or anything!! It didn't really make that much difference to me I don't think as none of the medications helped.

Please don't be afraid to tell your doctors there if your pain becomes too much!! I was always scared to tell them and it was probably one of the worst things I did!! When I finally did tell them, it was a huge relief and they were pretty supportive and allowed me to have a break etc. It's really important they know how you are feeling so please be honest ... it doesn't make you a complainer if you're in too much pain and it's best that they know so they can try and help you!!

You are in my thoughts and prayers and i'm really hoping that this will help and give you the pain relief you need and deserve!! If you ever want to talk, please know that I am here for you always!

Look forward to reading an update when you feel up to it,
Alison

I don't know how I missed some of this thread responses.
Pkwild With rsd everyone is different and what works for one person does not for another and why I would never judge anyone on there treatment. Even when someone asks me about a clinic or doc I went to I always state it as my experience and that they may be different because I would not want them not getting relief because I did not. This group of people are some of the most positive and strong people I know who are dealing with something that could make a lot of people not. Regardless some days people do have days where they need to cry and be down and that is okay in my eyes as though they move forward soon. My mom always said there is nothing like a good cry.
Jennelle I am not sure if she was bringing a laptop. I know my last email with her her cell broke but I am going to try to call her. Like Ali said though I know for me I was very drained from the long day.

Hi Jennelle,

You are in my thoughts, sweet lady



love you,
Dew

I talked to Jennelle the other night. I will let her update you as a lot was unknown. She has very long days because she is not staying there and her bf drives her 1.5 hours each way plus the program. She is such a sweet lady like so many here and I hope she and others holds to hope through the ups and downs. I also have to take my own advice. Many thoughts to all

Thank you for letting us know you heard from Jennelle. If you speak to her again will you please give her my love. I send you my love and well wishes too, daniella. Blessings to you both....di