Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-26-2009, 10:55 AM #1
loretta loretta is offline
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loretta loretta is offline
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Hi Checkmate and Welcome!
Wow, 60 lbs-that's great. Exercise is good for us, unless it has negative consequences. Sounds like walking mile and half does. Could you try half a mile and see what happens? Swimming for most of us is the ultimate. It's easy on the body and we can stay longer in the water. The water needs to be 86 degrees. The local YMCA can be an inexpensive way to go. Or some health clubs that are inexpensive, have water stretching classes etc. Their pool I think is usually around 85 degrees-up.
This is a critical time for you, sounds like you might be spreading? You want to keep
your symptoms down. Are you on a treatment program,meds? Stretching is good, physical therapy by someone knowledgeable of RSd is usually good. I kept my mobility because of it along with massage therapy. I do have one crippled limb, my left hand, was misdiagnosed and didn't get physical therapy soon enough/
If you are diagnosed within 6 months from injury, you have a better chance of remission. There is no cure. Desensitization is very important.
One point you won't like, some of the meds we use cause weight gain. And then less activity doesn't help.
Listen to you body, and ask your Dr. if he/she has experience with RSD.
You 'll find lots of support here. I'd encourage you to read read read older posts and current posts. Also RSDSA is the national organization that has good information On their website, they have a place for you to put in your zipcode, and they will give you a name a contact phone number. You can get support by these meeting and learn who in town has knowledge, Dr. wise. Also rscrx.com is a good site. Dr. Hooshmand is retired, but site is still up. The part called puzzles has 140 questions form patients and Dr. answers..
Hope the best for you, loretta I'm 61 have full body-14 years. Wasn't diagnosed for 4 years.
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Checkmate (07-26-2009)
Old 07-26-2009, 11:08 AM #2
Checkmate Checkmate is offline
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Quote:
Originally Posted by loretta View Post
Hi Checkmate and Welcome!
Wow, 60 lbs-that's great. Exercise is good for us, unless it has negative consequences. Sounds like walking mile and half does. Could you try half a mile and see what happens? Swimming for most of us is the ultimate. It's easy on the body and we can stay longer in the water. The water needs to be 86 degrees. The local YMCA can be an inexpensive way to go. Or some health clubs that are inexpensive, have water stretching classes etc. Their pool I think is usually around 85 degrees-up.
This is a critical time for you, sounds like you might be spreading? You want to keep
your symptoms down. Are you on a treatment program,meds? Stretching is good, physical therapy by someone knowledgeable of RSd is usually good. I kept my mobility because of it along with massage therapy. I do have one crippled limb, my left hand, was misdiagnosed and didn't get physical therapy soon enough/
If you are diagnosed within 6 months from injury, you have a better chance of remission. There is no cure. Desensitization is very important.
One point you won't like, some of the meds we use cause weight gain. And then less activity doesn't help.
Listen to you body, and ask your Dr. if he/she has experience with RSD.
You 'll find lots of support here. I'd encourage you to read read read older posts and current posts. Also RSDSA is the national organization that has good information On their website, they have a place for you to put in your zipcode, and they will give you a name a contact phone number. You can get support by these meeting and learn who in town has knowledge, Dr. wise. Also rscrx.com is a good site. Dr. Hooshmand is retired, but site is still up. The part called puzzles has 140 questions form patients and Dr. answers..
Hope the best for you, loretta I'm 61 have full body-14 years. Wasn't diagnosed for 4 years.
I am taking Soma to help me sleep and am taking Celebrex. I was diagnosed by my primary care doctor and have yet to see a pain management doctor or a neurologist. I go back to my doctor Monday, and I want to get with him to start a mulitdisciplinary approach to this, ie... neurologist, pain management doctor, physical therapist, and pyschologist. As of yet my symtoms are not that bad, but they are progressing.

thanks for your response.
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Old 07-26-2009, 11:36 AM #3
daniella daniella is offline
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daniella daniella is offline
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Hi welcome and good job on the weight and diet. I think we are all different so of course follow your own body and advice of team. I have been told for my condition to do as much as I can. Now a problem for me is I can't do long periods so it is better if I were to break it up. So if you want to do more can you spread it through the day? Also maybe some different types of activity if able. I often don't know when to push feel pain but then it settles down or push feel pain and oh my am in flare up for a long time. I think sometimes it is trial and error and sometimes when you make progress through this it can change
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Checkmate (07-26-2009)
Old 07-26-2009, 11:40 AM #4
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Thanks. I am breaking it up. I use to walk 3 miles. Now I am down to 2 miles. I think your suggestion of doing it for shorter periods more often is probably the route I will have to take, the thing is i do most of my exercising at work, so I can't be taking a shower 4 or 5 times. I suppose I will need to start walking more at home so I can do it more often with shorter durations.
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