Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-31-2009, 09:34 AM #11
CZZ74 CZZ74 is offline
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Default Problems after massage

Quote:
Originally Posted by SBOWLING View Post
Hello Pete,

RSD/CRPS acts differently for all of us. Treatments that work for some of us may not work for others. No two people have the same nervous system thus the reason for how severe our case may be.

I have have full body RSD with some organ involment (9 years now). I have had many massages. Your comment about following the patients feelings is perfect. It shows you are good at your job and you have your patients needs in mind. I know by how I feel if I can tolerate the touch of a therapist. For example today my pain is awful and it's deep muscle pain and my skin burns, the shower will hurt today so it wouldn't be a good for a massage. When this flair up settles down it would be great to have a massage. It's like this from the stress I have had this week. Stress and anxiety are pain agrivators for those of us with RSD.

My therapist says over and over tell me if this is too hard. She is quick to remind me not to be afraid to tell her when it hurts. RSD is not a no pain no gain condition when talking about PT or massage. There is hot RSD and cold RSD. I have hot RSD and use ice packs to put out the flames. Some people can't tolerate ice and use heat.

For me keeping the massage as relaxing as possible is key.
Thanks, for taking the time to research RSD on behalf of your clients.
Take care,
Sherrie
Hi I try to take massage to increase circulation. However if I make it thorugh a light swedish massage on the areas i can stand, never feet, I pay dearly after with severe flare - severe, I still try every three to 4 months, but honestly I donat know if it is worth it. cz
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Old 08-01-2009, 09:02 AM #12
SBOWLING SBOWLING is offline
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I take skelaxin muscle relaxer before I go and I don't go if it's a bad pain day. Then I try and keep my day relaxing for the rest of the day to help avoid additional pain if I can.
Sorry, it doesnt work for you like you would like. Take care and I hope this finds you having a managed pain day.
Sherrie
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Old 08-01-2009, 06:03 PM #13
AintSoBad AintSoBad is offline
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Has
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I notice that, that someone will come in, post once or twice, and
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They're gone.

Oh well.

I hope we helped someone......


Pete
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Old 08-02-2009, 04:19 AM #14
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Quote:
Originally Posted by MrPete View Post
I'm wondering about what kind of experiences you have had with Massage. I am a massage therapist in Washington State. I had never heard of RSD until a patient called and wanted a massage to reduce her Migraine. As a good therapist I turned to the internet to learn as much as I could about the condition and how massage interacted with it.

I found information that said it was quite effective and just keep the massage as relaxing as possible and to avoid heat or ice. As always once I do my home work and learn what works I have several more patients with the same condition. Presently I have 3 patients who swear that their massages have been a life saver. I have been sticking to a medium to light relaxing massage and just following the patients feelings of when to treat and how deep. So far both patients have been coming in weekly.

I am wondering what more of you patient have to say and what experiences you have had. Since this has been helpfull for my patients maybe it will give the rest of you guys some relief. At this point I can't give any thoughts about the long term effects but with other auto imune diseases massage is quite effective.

Good luck
Pete


Massage, just this past month, has become an almost decadent part of my arsenal.

The most difficult part was finding a therapeutic, non-spa like setting. Much better at loosening some muscles, albeit temporarily, than any muscle relaxer taken thus far.
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Old 08-03-2009, 03:19 PM #15
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Default I am reading

UOTE=AintSoBad;546085]Has


Mr Pete been back?
To comment or thank us for our thoughts?

I notice that, that someone will come in, post once or twice, and
Phhhhhh!
They're gone.

Oh well.

I hope we helped someone......


Pete[/QUOTE]

I have been reading your notes! I just had trouble logging back in. Thanks for all that you have written. I do see a wide variety of answers. It appears I have been the very best by letting the patient tell me when to get worked on. Letting these patient cancel anytime. (Not a good business practice but fits their need). Good luck to all of you!!
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Old 08-03-2009, 03:27 PM #16
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Default Hot and Cold RSD?

Quote:
Originally Posted by CZZ74 View Post
Hi I try to take massage to increase circulation. However if I make it thorugh a light swedish massage on the areas i can stand, never feet, I pay dearly after with severe flare - severe, I still try every three to 4 months, but honestly I donat know if it is worth it. cz
CZZZ74 - Of all the things I have read I find your comments the most interesting. A Hot RSD and A Cold RSD. This may be the most important piece of information I have read. Is their 2 different diseases that have many common things but 1 area that vary greatly in. I had read to stay away from both hot and cold. But you say that Ice works with you when you are having a hot episode and others have cold episodes were heat helps. I think this may be an area that needs to be discussed more.
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Old 08-04-2009, 01:50 AM #17
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Default Stay away from (massage techniques)

I would just say this. Massage Techniques - In most cases are created by massage therapist that are not able to make a living taking care of people because they just aren't good enough at what they do. So they invent a new technique. Yes I have heard of the Alexander Technique. Though in practice if you went to 10 massage therapist using the alexander technique you would get 10 vary different massages.

So far I have stayed very light with my massage for my RSD patients. I always listen to the patient and work within the boundries they set and I agree with my RSD patients a vigorous rub may cause them more harm than good, But woking very light and then slowly working harder listen and watching for any signs of agitation and at the slightest sign back off and working lighter seems to work. I've been using just the basic swedish massage technique that is the basis behind almost all techniques.

I would tell you that if you listen to your body and get a light massage when its quiet you may get positive results may patients have said their flare ups since getting massages have decreased.

In all of my patients I also notice. They are depressed and worried about the future. I think this would be a natural response. I think that part of their results comes from the up lifting conversations that we have. As I have been reading through you descriptions and post it seems very clear to me that modern medicine seems to be letting you down and giving each and everyone of you depressing out look. I call this VooDoo medicine. Be carefull not to believe all the bad news but listen to it.
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Old 08-04-2009, 02:00 AM #18
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Default Massag up is Best!

I am glad to hear your thoughts. They seem to fit with my patients. I think the light massage helps because it is relaxing and they seem to say their symptoms are much with increased stress.

When doing massage in an upward direction as you stated you are moving the blood towards the heart. With all massage you should be pushing towards the heart. You see the veins have gates and if you push away from the heart you can damage the gates which would harm your circulation and cause vericouse veins. Keep up the light massage when your body allows some of the sources I have been reading say that massage can back some down from stage 3 to 1. This is the most encouraging news I have heard. Another important link seems to be getting plenty of sleep. Maybe sleeps suddies would be helpful.
Pete
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Old 08-04-2009, 02:11 AM #19
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Default Types of RSD

Everything I have read from modern medical journals about RSD states to stay away from both HOT and Cold

Thought, In one of the replys someone stated they had "Hot RSD" they said that their are 2 types Hot and Cold. Also stated with the "hot" cold helps and with the "cold" hot heat helps. Don't know but if they are correct sounds knowing this would help a lot. Becarefull and try things slowly and just be aware that modern medicine is coming up with cures at a faster and faster pace. Just realize if you have little or no hope today tomorrow their maybe be plenty of hope. Keep your chin up and smile when if your feeling down.
Pete
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Old 08-04-2009, 02:28 AM #20
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Default I'm not in Massage for recognition

Quote:
Originally Posted by loretta View Post
Hi Pete,
I developed RSD following surgery, but didn't get diagnosed for 4 years. My shoulder froze up and was sent to physical therapy. Very painful, but after 100 treatments got the use of my shoulder-arm back. I decided on my own to go to massage therapist just prior to physical therapy, to soften up shoulder, so my advancement would go faster. I'm glad I did. The RSD moved to other shoulder and I again had pt and massagae therapy.
Now have full body, and have continued with massage therapy,swimming, stretching, anything to keep mobile. It does help. I especially liked the lymph glands in my sinus area, helped drainage, and headaches. Thank you for asking and researching. What part of Washington State. My in-laws live in Port Angeles, and I have good friends in Bellingham. Sincerely, loretta
I would rather not say were I am. The massage community is quite small and have more business than I need. This is just a great way to help those I am helping better. I am so glad to hear your shoulders are doing so well. Most shoulder injuries are easy but I can't imagine it being easy when the patient has RSD!
Keep smiling it helps keep the stress and depression away!
Pete
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