Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-28-2009, 08:26 PM #1
AintSoBad AintSoBad is offline
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AintSoBad AintSoBad is offline
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Hey Pete,

I've had RSD for 25+ years.
And, massage is rarely indicated, except for one kind that I'm aware of.
Alexander Technique. It really worked well! (Have you heard of that?)
It's very soft and gentle, and concentrates on "extricating any pent up energies from the spine, on out, through the extremities. (It has admittedly been a long time since I've had it done). So, feel free to add to or update my memory!

Soft Tai Chi kind of stuff.

(a "Vigorous Rub Down" kind of massage, is the worst, it can start all the bad pain to flare, so, be careful).

Migraine responds really well to a neck massage and a soft chiropractic adjustment, imho.

Good Luck to ya,

Pete
Asb
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Old 07-29-2009, 12:46 AM #2
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Dew58 Dew58 is offline
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Ooo

No Massage for ME, Thank You...air hurts me..hubby "tip toes" when near me..
sighs

I think RSD/CRPS is a "heartless" disease..took away my active self, and also negates "touch" in my life,as well.

Dew
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-04-2009, 01:50 AM #3
MrPete MrPete is offline
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Default Stay away from (massage techniques)

I would just say this. Massage Techniques - In most cases are created by massage therapist that are not able to make a living taking care of people because they just aren't good enough at what they do. So they invent a new technique. Yes I have heard of the Alexander Technique. Though in practice if you went to 10 massage therapist using the alexander technique you would get 10 vary different massages.

So far I have stayed very light with my massage for my RSD patients. I always listen to the patient and work within the boundries they set and I agree with my RSD patients a vigorous rub may cause them more harm than good, But woking very light and then slowly working harder listen and watching for any signs of agitation and at the slightest sign back off and working lighter seems to work. I've been using just the basic swedish massage technique that is the basis behind almost all techniques.

I would tell you that if you listen to your body and get a light massage when its quiet you may get positive results may patients have said their flare ups since getting massages have decreased.

In all of my patients I also notice. They are depressed and worried about the future. I think this would be a natural response. I think that part of their results comes from the up lifting conversations that we have. As I have been reading through you descriptions and post it seems very clear to me that modern medicine seems to be letting you down and giving each and everyone of you depressing out look. I call this VooDoo medicine. Be carefull not to believe all the bad news but listen to it.
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