Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-30-2009, 10:14 AM #1
sue k sue k is offline
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Join Date: May 2007
Location: Western MA
Posts: 272
15 yr Member
sue k sue k is offline
Member
 
Join Date: May 2007
Location: Western MA
Posts: 272
15 yr Member
Heart hurting in MA-TO AJ822

hi aj822,
Thanks for writing to me. Sorry I didn,t get back to you right away. I have lost interest in so many things. I need to stop that and get back on this site.
This is the only place that we are understood. I spent the weekened at my grandaughters birthday party. It was so hardd and painful. Of course my kids thought that I should have been able to handle it. My husband told me to deal with it and was upset that I only made it half of the day. They just don't get it. Last night he told me that I just eat the pills because they are there. He thinks I get high off of them. I wish I did. Sometimes he is good about how I feel and then he hits me with words like that. I,ve had RSD for 10 yrs now. I got it from a hip replacement. They don't understand that it isn't just the pain. Its what I've lost. Little things like wearing flip flops, going barefoot, cooking the big meals for my family, playing with my grandkids. It seems like small stuff, but to me its huge. Please tell me your story. I hope that you are having a somewhat painfree day.

Sue K
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Dew58 (07-31-2009), DianaA (07-30-2009), fmichael (07-30-2009), loretta (07-30-2009)
 


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